I had the dreaded LP today. It was not all *bad*, definatlely way better than my first time. He did have a hard time getting the CSF though, something about my low pressure. Apparently mine was quite low and that took longer than is typical. THey had to tilt the bed so my head was up and I was practically standing. The first time they did this I almost fainted. I got really shaky and felt nauseous, then knew I was going to faint. The nurses knew it to and put the table flat right away. I came right out of it then. Eventually they got enough though. LOL, I can never escape drama when it comes to a procedure.
Afterwards my MS specialist wanted me to see his NP to be evaluated and possibly put me on IV solumedrol again. She did all the checks, they we talked and she was very reluctant to want to use the steroid b/c of my tachycardic incident on prednisone - even though I did fine at the other hospital on solumedrol. (she appeared to be in the frame of mind of "I will believe that when I see it") She said my heartrate was already high, and she wasn't going to put me on it that way unless I was in patient, even if my heartrate was okay. So, longstory short - no IV solumedrol for me unless it is CRITICAL. Like I can't move my legs or my eye cannot see at all.
She spent a lot of time going over how I was in a relapse again. Apparently me seeing the "blind area" on Saturday is significant and marks the start of another relapse according to her and the specialist. I asked her if this was the same one as the one in Late NOv/early Dec and I am not sure exactly what she said, but in the end she said this was a new "flare."
So, I am just connecting dots here. If the specialist thinks this is a new flare, and I already had a flare in late Nov/early Dec, and I have an abnormal VEP and have ON and have lesions in my brain (could be from migraine could be from MS) and he mentioned on on my spine - doesn't this mean I meet the criteria for diagnosis even without the LP? I haven't talked to him, so mabey he is still concerned about the brain lesions - headache vs MS.
Plus, it was a bit disconcerting to have a medical professional talking about my relapse and remittance phases when I haven't been diagnosised yet.
Okay - well that was my day - for what it was worth and it all happened during a blizzard!
Afterwards my MS specialist wanted me to see his NP to be evaluated and possibly put me on IV solumedrol again. She did all the checks, they we talked and she was very reluctant to want to use the steroid b/c of my tachycardic incident on prednisone - even though I did fine at the other hospital on solumedrol. (she appeared to be in the frame of mind of "I will believe that when I see it") She said my heartrate was already high, and she wasn't going to put me on it that way unless I was in patient, even if my heartrate was okay. So, longstory short - no IV solumedrol for me unless it is CRITICAL. Like I can't move my legs or my eye cannot see at all.
She spent a lot of time going over how I was in a relapse again. Apparently me seeing the "blind area" on Saturday is significant and marks the start of another relapse according to her and the specialist. I asked her if this was the same one as the one in Late NOv/early Dec and I am not sure exactly what she said, but in the end she said this was a new "flare."
So, I am just connecting dots here. If the specialist thinks this is a new flare, and I already had a flare in late Nov/early Dec, and I have an abnormal VEP and have ON and have lesions in my brain (could be from migraine could be from MS) and he mentioned on on my spine - doesn't this mean I meet the criteria for diagnosis even without the LP? I haven't talked to him, so mabey he is still concerned about the brain lesions - headache vs MS.
Plus, it was a bit disconcerting to have a medical professional talking about my relapse and remittance phases when I haven't been diagnosised yet.
Okay - well that was my day - for what it was worth and it all happened during a blizzard!
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