I have been in limboland for 6 months now... Clear MRI of brain and spine, "atypical" symptoms (parasthesia and tinnitus), and clear blood tests. But now proof it is not all in my head...
EMG results were normal, but somatosensory evoked potentials were not. I know nothing except what the secretary told me over the phone: evoked potentials abnormal for legs and eyes. I won't see the neuro again till late January.
I thought only Visual EPs could show eye abnormalities??? Does this mean I have PNS and CNS problems??? Could it be that the signals are late from legs because of CNS problems, so that the leg issues do not reside in the PNS?
My presentation of symptoms does look autoimmune so is it most likely that I have progressive MS that did not show on an MRI? I still have not had a lumbar puncture but I guess that is next.
Any ideas? I feel so clueless right now I can hardly guess at what it could be...
EMG results were normal, but somatosensory evoked potentials were not. I know nothing except what the secretary told me over the phone: evoked potentials abnormal for legs and eyes. I won't see the neuro again till late January.
I thought only Visual EPs could show eye abnormalities??? Does this mean I have PNS and CNS problems??? Could it be that the signals are late from legs because of CNS problems, so that the leg issues do not reside in the PNS?
My presentation of symptoms does look autoimmune so is it most likely that I have progressive MS that did not show on an MRI? I still have not had a lumbar puncture but I guess that is next.
Any ideas? I feel so clueless right now I can hardly guess at what it could be...
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