Amprya~Day #5

[IowaGirl]

Hello fellow MS'ers!

I have read all the threads on Amprya. I started my first dose last Wednesday.

I was scared to death of all the side effects, especially the insomnia. I am not a pleasant person without my sleep at night.

So far, I have had NO side effects! I haven't noticed any particular changes, but from other posts I have read, it may take a couple of weeks.

I work full time and am very fortunate I can still be fairly active. I work out for an hour on the treadmill 5 times a week, just can't run anymore. I was diagnosed with PPMS 10 months ago. My main symptoms are fatique, numbness in my leg. I am concerned because now I am having tingling in my hand now along with my legs.

I know it's primary for walking, but I have noticed people commenting that it has helped with fatigue and energy level.

I was wondering if anyone else on Amprya has had good success, what symptoms it helped for you, and how long it took for you to notice a change if your physical well being.

Thanks all!!

[GinnyRuth]

Keep us posted on your progress. I still am not approved by my ins co for Amprya. But I'm still working on it with my Doctor. Good luck to you!

[IowaGirl]

Good luck to you GinnyRuth on getting the prescription!

My process actually went pretty fast. By the time the doctor OK me, until it came to my door was about 3 weeks.

Once you get it and have been on it, post your results! I am very anxious to see how this works. I hope you have the same luck I am with the side effects!!

[Scooter24]

I am now on month 5 of Amp, It has helped my walking, and as a result of that it has helped my fatique some as it seems easier to walk. I had problems sleeping but changed my schedule so I take my PM dose right before I go to bed and that took care of that problem.
Some people seem to feel the effect level drops off after a while but I wil say to anyone that thinks that is the case don't take a dose or 2 and see what happpens, I can really feel the difference then, I think your body just gets used to the new and improved and you don't notice anymore.

[GinnyRuth]

Good news Scooter!

[carolynj]

New Ampyra user here too!

Hi All! I am on Day 4 of Ampyra myself. No results yet - hoping!

The instructions say that you can take with or without food. Does anyone have opinions? Both yesterday and today I have had very uncomfortable stomach cramping within an hour or so after taking my morning dose - it usually goes away in another hour or so. I do not eat breakfast so it is totally on an empty stomach. The evening dose is fine. I am wondering if I need to eat before that morning dose?

I have also had a bit of a headache but that was worse the first 2 days and seems to be subsiding now.

I read that the drug helps "walking speed". What do they mean by that? It has to help walking in general or can't help your speed - right? I just don't get why they are so particular to say "speed".

Good luck to everyone - here's hoping for good results for us all!!