Hi all - I'm sorry I'm not a frequent poster at all but I do find this forum very helpful and as I progress with MS, I will be here more frequently.
I was dx:ed 10 years ago, also had neuro Lyme's concurrently and have often wondered if I really have MS or some genetic thing as my dad has very similar problems to me. However he has never been to a neuro & I would have trouble getting him to go to one - but I will!
Anyway a question about fatigue - I'll be doing chores, light to heavy it doesn't matter, but after what seems like not very long, I start to have trouble standing up, my knees bend more and more. As I go along, eventually I can no longer stand at all and practically crawl to bed. After resting for an hour or so, I can start again. But the times that I can stand become shorter and shorter during the day. All in all, I have about four sometimes five periods where I am able to do things on my feet and then I have to give it up.
Does anyone else have fatigue similar to this? I don't feel tired necessarily but the legs give out. Told my neuro and he double my Adderal dose. Helped for a week, but that's it.
2. Second question - when I'm going through a period of extreme stress in my life, I'll be lying down trying to sleep and my whole body rocks back and forth very slightly. Thought it was just something I felt but DH says I am actually rocking back and forth - the whole body. Anyone else????? I did some research and all I can find is some type of psychosis that causes that - I really didn't fit that profile psychologically although who knows, maybe I am crazy.
Thanks for your help!!! I really appreciate any help anyone can offer as far as similar experiences. When I can, soon, will go back to my original neuro as my current one is not very good IMHO.
I was dx:ed 10 years ago, also had neuro Lyme's concurrently and have often wondered if I really have MS or some genetic thing as my dad has very similar problems to me. However he has never been to a neuro & I would have trouble getting him to go to one - but I will!
Anyway a question about fatigue - I'll be doing chores, light to heavy it doesn't matter, but after what seems like not very long, I start to have trouble standing up, my knees bend more and more. As I go along, eventually I can no longer stand at all and practically crawl to bed. After resting for an hour or so, I can start again. But the times that I can stand become shorter and shorter during the day. All in all, I have about four sometimes five periods where I am able to do things on my feet and then I have to give it up.
Does anyone else have fatigue similar to this? I don't feel tired necessarily but the legs give out. Told my neuro and he double my Adderal dose. Helped for a week, but that's it.
2. Second question - when I'm going through a period of extreme stress in my life, I'll be lying down trying to sleep and my whole body rocks back and forth very slightly. Thought it was just something I felt but DH says I am actually rocking back and forth - the whole body. Anyone else????? I did some research and all I can find is some type of psychosis that causes that - I really didn't fit that profile psychologically although who knows, maybe I am crazy.
Thanks for your help!!! I really appreciate any help anyone can offer as far as similar experiences. When I can, soon, will go back to my original neuro as my current one is not very good IMHO.
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