Hello, I am new here. Only posted a few times. My friend was waiting on results for Lupus which we thought she had and although she still has the symptoms they did an MRI of her brain and it revealed lesions associated with MS.
Long story short, dr's did a spinal tap and checked out her fluid which was negative for lupus and lyme disease. It did show "two bands". Her dr. said over the phone that the bands were associated with MS and that she was in the early stages and he would review her charts and history and see her for her appt which was yesterday.
Now she had some serious stuff happen after the spinal tap but she is doing better!
Her dr. yesterday walked into the office and said to her that there were only two bands and that wasn't enough to determine MS diagnosis. She was floored! SO upset and not wanting to deal with trusting people who are basically telling her yes you have it but since you aren't worse off there is nothing we can do!
The dr. said she had to have more bands plus the lesions to confirm MS for sure. He said that he was going to diagnose her with Fibromyalgia for now so that she can get a referral for PT and for meds. BUT it wouldn't cover meds to stop the progression of MS. So only a bandaid on this situation for now.
dr. said that there are quidlines he is following and would be happy to refer her to another dr. for a 2nd opinion.
She's in Maryland, what guidelines is this dr. talking about?
Is there some guideline out there that we can go by to help figure this out?
Should she go for a 2nd opinion?
See I wouldn't tell another what the 1st one said because I feel they are all working together. She said he seemed to want to help her but had his hands tied.... I don't get it and I don't buy it. But then I am a cranky girl with a friend in need and I can do a dang thing about it so I might not be the best person to be dealing with her dr's right now lol!
any thoughts/suggestions on this ?
Thank you so much!
Long story short, dr's did a spinal tap and checked out her fluid which was negative for lupus and lyme disease. It did show "two bands". Her dr. said over the phone that the bands were associated with MS and that she was in the early stages and he would review her charts and history and see her for her appt which was yesterday.
Now she had some serious stuff happen after the spinal tap but she is doing better!
Her dr. yesterday walked into the office and said to her that there were only two bands and that wasn't enough to determine MS diagnosis. She was floored! SO upset and not wanting to deal with trusting people who are basically telling her yes you have it but since you aren't worse off there is nothing we can do!
The dr. said she had to have more bands plus the lesions to confirm MS for sure. He said that he was going to diagnose her with Fibromyalgia for now so that she can get a referral for PT and for meds. BUT it wouldn't cover meds to stop the progression of MS. So only a bandaid on this situation for now.
dr. said that there are quidlines he is following and would be happy to refer her to another dr. for a 2nd opinion.
She's in Maryland, what guidelines is this dr. talking about?
Is there some guideline out there that we can go by to help figure this out?
Should she go for a 2nd opinion?
See I wouldn't tell another what the 1st one said because I feel they are all working together. She said he seemed to want to help her but had his hands tied.... I don't get it and I don't buy it. But then I am a cranky girl with a friend in need and I can do a dang thing about it so I might not be the best person to be dealing with her dr's right now lol!
any thoughts/suggestions on this ?
Thank you so much!
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