POEM 18 "MonSter"
Like a thief in the night
Robbing you of flexibility, balance,
Strength and sometimes sight
Your dexterity, mobility
Even sensations of touch
Spasticity in your extremities
Bowel issues and such
Then you have days
Where the challenge is just to talk
Fighting off slurring and babbling
Then one day you’re too weak to walk
Thus confined to a chair
Or forced to use a walker or cane
Knowing all too well
Your life will never be the same
Then your memory starts to slip
See how I forgot to mention
It can be long or short term
Both in recall and retention
All this can be frustrating
Causing an emotional overload
From one extreme to the other
As though your head will explode
An ever tightening load of pressure
Squeezed by an invisible snake
Our “MS Hug” constrictor
Gives us all we can take
Tons of medications
To be consumed each day
Some thru injections or IV’s
For symptoms that won’t go away
These are just a few
Of our struggles and strife
We have Multiple Sclerosis
Welcome to a day in our life
We ask not of your pity
Just an occasional hand,
Applause and hugs when needed
And sometimes a lift to stand
I hope in some way
This poem is a key
To a better understanding
Of this disease within me
Ken Schuler Dx 2008 PPMS
Robbing you of flexibility, balance,
Strength and sometimes sight
Your dexterity, mobility
Even sensations of touch
Spasticity in your extremities
Bowel issues and such
Then you have days
Where the challenge is just to talk
Fighting off slurring and babbling
Then one day you’re too weak to walk
Thus confined to a chair
Or forced to use a walker or cane
Knowing all too well
Your life will never be the same
Then your memory starts to slip
See how I forgot to mention
It can be long or short term
Both in recall and retention
All this can be frustrating
Causing an emotional overload
From one extreme to the other
As though your head will explode
An ever tightening load of pressure
Squeezed by an invisible snake
Our “MS Hug” constrictor
Gives us all we can take
Tons of medications
To be consumed each day
Some thru injections or IV’s
For symptoms that won’t go away
These are just a few
Of our struggles and strife
We have Multiple Sclerosis
Welcome to a day in our life
We ask not of your pity
Just an occasional hand,
Applause and hugs when needed
And sometimes a lift to stand
I hope in some way
This poem is a key
To a better understanding
Of this disease within me
Ken Schuler Dx 2008 PPMS
Comment