Hi Folks,
hope maybe to hear some good advice to my situation.
I will try to keep it short.....
since December till now:
4 Hospital stays.
first Transverse Myelitis in 1996
1 Lesion Spine
one relapse a year later- no dx
no changes in MRI.
Stamped Depressed
I was not.......
Dec 2007 Dx- MS benign
From December till now have gotten worse.
started Cop in March.
the IVSM worked somewhat in December but not in April
or June.
I was offered Plasmapharesis
Fingolimod Trial
or Mitoxantrone.
So I also get told that I am SPMS
They then were pushing the trial on me and I donīt want that.
Chemo is a big step so I want a second opinion.
Go to my old Neuro where I used to live and he is also against the Fingo and would rather try Plasma before.
He also thinks either spms or relapsing spms
This by the way is all being planned by my main doctor working with both Neuros.
So we all decide
go with the lesser evil first.
makes sense.
While all this is happening I am working on my Diet,
learning about my med options, SPMS, doing everyday what I can to get back on track.
But my walking is after a short distance very off
lots of Neuropain
Weakness and my husband is my constant witness along with my doctor because he is also a friend of mine and knows me throughout all of this.
So get to this hospital and the Neuro on the floor here saw me at 7:00pm.
I came in at 8:00 a.m.
mornings I am good evenings I can barely form a sentence.
So this "Dr. House" comes in and asks me whatīs going on so I begin to explain.
He cuts me off and says "No whatīs your problem now, and what happened exactly first"?
he can read the file itīs all there I am having memory problems...
He gives me this look and says
"Well itīs too late for Plasmapharese"
I was shocked and of course through frustration and the tears well up in my eyes.
This guy than says "Your depressed"
So I told him what I thought of him and said and that anger itīs not depression, Iīm frustrated because I am trying to explain something and I thought everything was clear.
so he left in a frump and today comes and tries to explain to me that itīs ok to be depressed and I should go to a psychosomatic-clinic.
and he thought I was going from doctor to doctor chasing a treatment.
I then said "What! I didnīt plan this and if itīs too late someone screwed up but not me. I heard Chemotreatment and want a second opinion so is that a depression?
You hit me with a wall last night after thinking everything was clear. I get a depression diagnosis for this?!
What would you do?
I will not go in a 3 week clinic stay.
should I check out on Monday?
Appreciate any and all attempts to understand this and answer..
My husband and doctor who know me very well donīt think I am depressed.
and I do understand about talking to a professional yadayada but this is !!!!!!!!!!!!!
hope you are all having something good happen today.
ww
hope maybe to hear some good advice to my situation.
I will try to keep it short.....
since December till now:
4 Hospital stays.
first Transverse Myelitis in 1996
1 Lesion Spine
one relapse a year later- no dx
no changes in MRI.
Stamped Depressed
I was not.......
Dec 2007 Dx- MS benign
From December till now have gotten worse.
started Cop in March.
the IVSM worked somewhat in December but not in April
or June.
I was offered Plasmapharesis
Fingolimod Trial
or Mitoxantrone.
So I also get told that I am SPMS
They then were pushing the trial on me and I donīt want that.
Chemo is a big step so I want a second opinion.
Go to my old Neuro where I used to live and he is also against the Fingo and would rather try Plasma before.
He also thinks either spms or relapsing spms
This by the way is all being planned by my main doctor working with both Neuros.
So we all decide
go with the lesser evil first.
makes sense.
While all this is happening I am working on my Diet,
learning about my med options, SPMS, doing everyday what I can to get back on track.
But my walking is after a short distance very off
lots of Neuropain
Weakness and my husband is my constant witness along with my doctor because he is also a friend of mine and knows me throughout all of this.
So get to this hospital and the Neuro on the floor here saw me at 7:00pm.
I came in at 8:00 a.m.
mornings I am good evenings I can barely form a sentence.
So this "Dr. House" comes in and asks me whatīs going on so I begin to explain.
He cuts me off and says "No whatīs your problem now, and what happened exactly first"?
he can read the file itīs all there I am having memory problems...
He gives me this look and says
"Well itīs too late for Plasmapharese"
I was shocked and of course through frustration and the tears well up in my eyes.
This guy than says "Your depressed"
So I told him what I thought of him and said and that anger itīs not depression, Iīm frustrated because I am trying to explain something and I thought everything was clear.
so he left in a frump and today comes and tries to explain to me that itīs ok to be depressed and I should go to a psychosomatic-clinic.
and he thought I was going from doctor to doctor chasing a treatment.
I then said "What! I didnīt plan this and if itīs too late someone screwed up but not me. I heard Chemotreatment and want a second opinion so is that a depression?
You hit me with a wall last night after thinking everything was clear. I get a depression diagnosis for this?!
What would you do?
I will not go in a 3 week clinic stay.
should I check out on Monday?
Appreciate any and all attempts to understand this and answer..
My husband and doctor who know me very well donīt think I am depressed.
and I do understand about talking to a professional yadayada but this is !!!!!!!!!!!!!
hope you are all having something good happen today.
ww
Comment