I was diagnosed in December, 2009 with probable Primary Progressive MS. I have been to 3 different doctors, one including the Mayo clinic. I definitely have an autoimmune disease, but am now starting to question if it is actually MS. I was just curious if anyone else has had the same symptoms:
About 10 years ago, I had a red, itchy rash on the back of my upper thighs that came only in the spring and summer and was brought on by hot water in the shower and when I sat on something warm or hot..etc, leather seats in a warm vehicle. (Not the typical butterfly rash on the face, but now has me wondering.) This lasted for about 4 years, no longer have it.
Unexplained quarter size bumps only on the bottom of my leg that left a faint, red mark for months. The bumps no longer occur, but I still get unexplained faint, red marks that last a long time.
Weakness in one leg that intensifies after exercise.
Unexplained bruising
Vision blurriness at times
Muscle spasms in my leg, that intensifies with exercise
Gait issues, I can no longer run normal. My walking is now with a "slight limp"
Occasional fatigue
Ankle pain that is worse in the morning after I wake up. It takes me a few minutes to be able to stand up straight.
My memories of my childhood, high school, college, my wedding, and children's younger days is minimal.
I also have a large hemangioma on my liver that may be caused by damage from lupus?
My mother has a mild form of MS, so I'm afraid I am being lumped into a general category due to her diagnosis. I am now starting to question Lupus due to the unanswered rash from years past and the bruising, red marks on legs.
I would have never questioned the MS diagnosis until I remembered these other symptoms a few months ago.
Have any of you questioned your MS diagnosis? There is no medication that can treat primary progress MS, just taking medication to treat the symptoms. I just want to get the right diagnosis so I can get the right medical attention. There is definitely an autoimmune disease going on, just need to question my first diagnosis.
Thanks for letting me ramble and vent!! I tried to make it short, but my brain wouldn't let me stop!
About 10 years ago, I had a red, itchy rash on the back of my upper thighs that came only in the spring and summer and was brought on by hot water in the shower and when I sat on something warm or hot..etc, leather seats in a warm vehicle. (Not the typical butterfly rash on the face, but now has me wondering.) This lasted for about 4 years, no longer have it.
Unexplained quarter size bumps only on the bottom of my leg that left a faint, red mark for months. The bumps no longer occur, but I still get unexplained faint, red marks that last a long time.
Weakness in one leg that intensifies after exercise.
Unexplained bruising
Vision blurriness at times
Muscle spasms in my leg, that intensifies with exercise
Gait issues, I can no longer run normal. My walking is now with a "slight limp"
Occasional fatigue
Ankle pain that is worse in the morning after I wake up. It takes me a few minutes to be able to stand up straight.
My memories of my childhood, high school, college, my wedding, and children's younger days is minimal.
I also have a large hemangioma on my liver that may be caused by damage from lupus?
My mother has a mild form of MS, so I'm afraid I am being lumped into a general category due to her diagnosis. I am now starting to question Lupus due to the unanswered rash from years past and the bruising, red marks on legs.
I would have never questioned the MS diagnosis until I remembered these other symptoms a few months ago.
Have any of you questioned your MS diagnosis? There is no medication that can treat primary progress MS, just taking medication to treat the symptoms. I just want to get the right diagnosis so I can get the right medical attention. There is definitely an autoimmune disease going on, just need to question my first diagnosis.
Thanks for letting me ramble and vent!! I tried to make it short, but my brain wouldn't let me stop!
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