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    I feel stoned & hate it, does anyone else feel this?

    Hi everyone
    Just recently I started feeling wasted on all the meds I'm taking. I didn't like the feeling when I did it as a kid & hate it worse now; especially since I have 3 kids. I feel like I talk fast, can't concentrate & feel loopy. I went to my nuero the other day & he said it was b/c I went off Klopin & to start taking it at nite. So now I'm on Ampyra, Baclafin, Klopin, Ambien, Cymbalta, Avonex & 800 mg ibuprofen when needed for pain & feel like Lindsey Lohan except I don't choose or want this I really feel over medicated & I do believe the drs. do this to us, even if they are good. I'm 5' 7" & 120 on a good day so I think this is too much medicine for me! I don't know what to do b/c if I stop one, dr will put me back on it or I'll feel like crap. I didn't take my Ampyra this morning b/c I thought that was making me feel stoned but that was not it.
    Don't know what to do????? Plus I'm constipated from one of them & don't know which one that is???? Any advice before I can the nuero office tomorrow would be greatly appreciated!!!!
    Thank you & Feel well everyone!!!!

    #2
    I can relate to feeling overmedicated, sounds good to review what you are taking with the doc and see where you are at as far as eliminating any of them, and the proper way to do that.

    The common meds we take are Avonex, ibuprofen, ambian. I don't think any of these have cause me constipation. Just trying to help you rule that out. I had a hard time keeping weight on for the first 6 years on Avonex. It disturbed my desire to eat and everything tasted off. For some odd reason I recently gained weight.....blah....I felt better super thin, not sure what is up.

    I'm rambling now, hope you have a productive appointment with your doc!

    Comment


      #3
      My concern also

      For my MS i'm on only one med. Copaxone.

      I take other meds for other conditions so it all adds up.

      One day my dh and I were watching the news and the Lindsey Lohan situation came on. I turned to dh and said 'who would take all these meds on purpose'???

      I've often said that to my dh AND my doctor, who just ignores me. When I went to the new neuro here after I moved, he gave me a cursory exam and turned me over to his PA. She suggested some meds (which i call uppers) and when I asked about that and the effect on the liver she said 'you'll have to ask a liver specialist' and when I asked the same regarding the impact of my meds on my Thyroid (low thyroid) she said 'you'll have to ask a thyroid specialist. So you can pretty much see where that went. She made me feel like a fool plus my opinion (from experience) is the docs just shuttle you back and forth.

      I often wonder why we don't get high marks from showing interest and not blindly accepting treatments without having our questions answered.

      If you call a doctor on something they said and then reversed their opinion on...they get angry.

      Sigh...you have my sympathy.

      Diane
      You cannot dream yourself into a character; you must hammer and forge yourself one.

      Comment


        #4
        just say yes

        Thks for your reply, I will talk with my doc b/c I can't handle this feeling of being over medicated but I don't want to give up meds if they are helping me.
        Thks again!

        Comment


          #5
          so true about Lindsey Lohan

          Originally posted by DianeD View Post
          For my MS i'm on only one med. Copaxone.

          I take other meds for other conditions so it all adds up.

          One day my dh and I were watching the news and the Lindsey Lohan situation came on. I turned to dh and said 'who would take all these meds on purpose'???

          I've often said that to my dh AND my doctor, who just ignores me. When I went to the new neuro here after I moved, he gave me a cursory exam and turned me over to his PA. She suggested some meds (which i call uppers) and when I asked about that and the effect on the liver she said 'you'll have to ask a liver specialist' and when I asked the same regarding the impact of my meds on my Thyroid (low thyroid) she said 'you'll have to ask a thyroid specialist. So you can pretty much see where that went. She made me feel like a fool plus my opinion (from experience) is the docs just shuttle you back and forth.

          I often wonder why we don't get high marks from showing interest and not blindly accepting treatments without having our questions answered.

          If you call a doctor on something they said and then reversed their opinion on...they get angry.

          Sigh...you have my sympathy.

          Diane
          I said the same thing to my husband, who the hell would wants to feel this wasted. We are stuck with the drugs b/c we have MS and if we go off them it will affect our MS. I wonder if someday, yeah right, we could come off all of them, if we would have to go to a rehab b/c we must be addicted. Very sad but true.
          I live in NC too, best state to live, love it here!!!! How about you?

          Comment


            #6
            Hi JMom

            I was just complaining about that today.

            They just increased my baclofen. I feel so drugged I wouldn't dare drive right now. But your body will adjust. You have to give it time to catch up.

            Strange how we hate it and people with nothing wrong with them will break into homes to get feeling will we do. Never have been able to figure that one out either.

            Good luck

            Comment


              #7
              Originally posted by JMom View Post
              I said the same thing to my husband, who the hell would wants to feel this wasted. We are stuck with the drugs b/c we have MS and if we go off them it will affect our MS. I wonder if someday, yeah right, we could come off all of them, if we would have to go to a rehab b/c we must be addicted. Very sad but true.
              I live in NC too, best state to live, love it here!!!! How about you?
              Wish I agreed about NC. We live south of Charlotte and it is hot in the summer. Winters are okay, but pretty cold.

              I got sick with a cough and general malaise when we moved here seven years ago and never recovered. Now I have been dx'd with asthma and COPD. I struggle here; not sure I can ever recover to my previous state.

              We are just getting too old to move or we would. My dear husband says he wouldn't have moved from Florida if he knew what was in store for us.

              Also miss my Florida neighbors; those here are nice but go their own way entirely. So it's a lonely place for me.

              I do have my little business, but it is hard to keep up with it since I usually have so little energy.

              Diane
              You cannot dream yourself into a character; you must hammer and forge yourself one.

              Comment


                #8
                i think it is the baclafen

                Originally posted by JoanFrances View Post
                I was just complaining about that today.

                They just increased my baclofen. I feel so drugged I wouldn't dare drive right now. But your body will adjust. You have to give it time to catch up.

                Strange how we hate it and people with nothing wrong with them will break into homes to get feeling will we do. Never have been able to figure that one out either.

                Good luck
                I agree I think it is the baclafen that makes me feel drugged. I can't live with & can't live without it. I'm hoping you are right & my body will adjust b/c I hate this feeling. Are you listening to the webcast tomorrow nite about spacticity? I think it may be about a new drug for this damn spasticity, I'm all into trying something new b/c that is my biggest symptom with MS.
                Hope you are feeling somewhat straight, how much are you on?

                Comment


                  #9
                  People have said to me "Why dont you just go get some pot, you can you know?'"

                  how bazare! and out there! I'm NOT known for doing drugs excpt in teen years a long long time ago.

                  I want to be awake and keep my blance and ability to pay attention and do good work. POT would make it impossible for me to do what I love to do, I dont understand theese people and this attuide about of I must have, to use pot.

                  Comment


                    #10
                    Hi Rubberlegs

                    Originally posted by rubberlegs View Post
                    People have said to me "Why dont you just go get some pot, you can you know?'"

                    how bazare! and out there! I'm NOT known for doing drugs excpt in teen years a long long time ago.

                    I want to be awake and keep my blance and ability to pay attention and do good work. POT would make it impossible for me to do what I love to do, I dont understand theese people and this attuide about of I must have, to use pot.
                    Only in some states is pot legal for medicinal purposes, not where I live & who the hell wants it b/c I'm wasted on prescription drugs. Hate this feeling, think it is the baclafen but can't do without all these MS drugs so I am a prescription drug addict. Obviously not by choice but it is what it is, what is the alternative??? Nothing!
                    Hope u r doing well.

                    Comment


                      #11
                      Darn it all

                      Originally posted by JMom View Post
                      I agree I think it is the baclafen that makes me feel drugged. I can't live with & can't live without it. I'm hoping you are right & my body will adjust b/c I hate this feeling. Are you listening to the webcast tomorrow nite about spacticity? I think it may be about a new drug for this damn spasticity, I'm all into trying something new b/c that is my biggest symptom with MS.
                      Hope you are feeling somewhat straight, how much are you on?



                      I missed the webcast cause we had to go to my daughter's for her D day. Love my daughter, but I really wanted to see the webcast

                      I am taking 80mgs now mjan. Was on 60 for like about 5 years maybe, (can't remember it feels like a life time). Anyway if I am not having issues I skip as many does as I can, but always keep at least 40mg in my body so I don't have to go through the usual 21 day wait for them to be up to max affectiveness. It took awhile when I started on Baclofin before my body got adjusted to 30mgs.

                      I am still feeling drugged today. Flacky would be a good expanation of how I feel. But then my nickname is "Flacky", so I guess I am living up to my name LOL

                      Comment


                        #12
                        joanFrances

                        Originally posted by JoanFrances View Post
                        I missed the webcast cause we had to go to my daughter's for her D day. Love my daughter, but I really wanted to see the webcast

                        I am taking 80mgs now mjan. Was on 60 for like about 5 years maybe, (can't remember it feels like a life time). Anyway if I am not having issues I skip as many does as I can, but always keep at least 40mg in my body so I don't have to go through the usual 21 day wait for them to be up to max affectiveness. It took awhile when I started on Baclofin before my body got adjusted to 30mgs.

                        I am still feeling drugged today. Flacky would be a good expanation of how I feel. But then my nickname is "Flacky", so I guess I am living up to my name LOL
                        The webcast is tomorrow night @ 7 so u didn't miss it.

                        Comment


                          #13
                          Originally posted by JMom View Post
                          Hi everyone
                          Just recently I started feeling wasted on all the meds I'm taking. I didn't like the feeling when I did it as a kid & hate it worse now; especially since I have 3 kids. I feel like I talk fast, can't concentrate & feel loopy. I went to my nuero the other day & he said it was b/c I went off Klopin & to start taking it at nite. So now I'm on Ampyra, Baclafin, Klopin, Ambien, Cymbalta, Avonex & 800 mg ibuprofen when needed for pain & feel like Lindsey Lohan except I don't choose or want this I really feel over medicated & I do believe the drs. do this to us, even if they are good. I'm 5' 7" & 120 on a good day so I think this is too much medicine for me! I don't know what to do b/c if I stop one, dr will put me back on it or I'll feel like crap. I didn't take my Ampyra this morning b/c I thought that was making me feel stoned but that was not it.
                          Don't know what to do????? Plus I'm constipated from one of them & don't know which one that is???? Any advice before I can the nuero office tomorrow would be greatly appreciated!!!!
                          Thank you & Feel well everyone!!!!
                          Like the others, Baclofen makes me groggy and sleepy... but oh my.. Cymbalta was horrible. I took it for a couple of months and I felt like I was going crazy. I felt like I was outside of myself.. sounds weird, but that's how I felt. I'm now off Cymbalta and back on Wellbutrin.

                          Comment


                            #14
                            cymbalta

                            Originally posted by Sugah Britches View Post
                            Like the others, Baclofen makes me groggy and sleepy... but oh my.. Cymbalta was horrible. I took it for a couple of months and I felt like I was going crazy. I felt like I was outside of myself.. sounds weird, but that's how I felt. I'm now off Cymbalta and back on Wellbutrin.
                            Going crazy how? outside myself how? Want to see if I have same theories b/c I'm on that drug. I sometimes feel like I'm slurring my speech. Trying to figure out why so wasted. Thks for all your help.

                            Comment


                              #15
                              Originally posted by JMom View Post
                              Going crazy how? outside myself how? Want to see if I have same theories b/c I'm on that drug. I sometimes feel like I'm slurring my speech. Trying to figure out why so wasted. Thks for all your help.
                              It's difficult to explain... nervous, anxious, distant and disconnected. It was like I was hearing and seeing the world around me from a far. I wasn't cognizant of my actions.. I would do or say something and then a minute later... I was in a fog and couldn't remember if I "really" said that... Like I said CRAZY CRAZY CRAZY

                              Comment

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