Hello... I havent been here in quite awhile. I Usually disappear for a year and come back ! Once I go into one of my flairs I Return. I just had about my 6th or 7th case of Optic Neuritis. Im getting so used to getting it now, it just seems to be a part of life now. So ofcourse this all started on about the first warm day on long island. So off to the neuro I go.
Sooo neuro ofcourse says here we go again.. IV solu medrol, taper down of pred and lots of tests. My neuro had Diagnosed me and undiagnosed me numerous times. My MRIs have all been pretty much clear.Only my first one showed one lesion that could have been related to migraines. Im going through this for 4 years now. My VEP shows severe demyelination. Sooo I have all these tests done and call to get my results. The neuro's Asst tells me.. ok well your Brain MRI shows 2 areas of white matter changes with signal intensity enhancing. Which is unchanged since your MRI last July... problem is... I was told my MRI last year was normal. Soo I said to her.. Ummm are you sure you are reading MY MRI? She said yes its in your chart, also with your VEP showing severe demyelination worse than last years and also you are showing hearing loss now as well. Well you can imagine my shock. So just out of curiousity I said.. sooo what does the MRI report where it says impression say.. She says.. demyelinating process such as MS. I almost fell off my chair.
So with an MRI stating 2 areas of white matter changes with signal intensity enhancements.. something to that effect with severely abnormal VEPs And numerous abnormal neuro exams will that enough to finally get me out of the dreaded Limbo Zone?????
I will be picking up the report Monday so I Can go over it myself. I dont see my neuro until july 1st.
Sooo neuro ofcourse says here we go again.. IV solu medrol, taper down of pred and lots of tests. My neuro had Diagnosed me and undiagnosed me numerous times. My MRIs have all been pretty much clear.Only my first one showed one lesion that could have been related to migraines. Im going through this for 4 years now. My VEP shows severe demyelination. Sooo I have all these tests done and call to get my results. The neuro's Asst tells me.. ok well your Brain MRI shows 2 areas of white matter changes with signal intensity enhancing. Which is unchanged since your MRI last July... problem is... I was told my MRI last year was normal. Soo I said to her.. Ummm are you sure you are reading MY MRI? She said yes its in your chart, also with your VEP showing severe demyelination worse than last years and also you are showing hearing loss now as well. Well you can imagine my shock. So just out of curiousity I said.. sooo what does the MRI report where it says impression say.. She says.. demyelinating process such as MS. I almost fell off my chair.
So with an MRI stating 2 areas of white matter changes with signal intensity enhancements.. something to that effect with severely abnormal VEPs And numerous abnormal neuro exams will that enough to finally get me out of the dreaded Limbo Zone?????
I will be picking up the report Monday so I Can go over it myself. I dont see my neuro until july 1st.
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