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I've agreed to use Ampyra.

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    I've agreed to use Ampyra.

    It sounds like a promising drug and I'm willing to give it a shot.
    Without hope there's nothing.

    #2
    Can you guys share your experience with this new drug?
    Without hope there's nothing.

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      #3
      Hope you do well.
      Dx 4/04
      Copaxone 5/04-3/05
      Rebif 4/05-present

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        #4
        ms man

        I've been reading so much on ampyra on this board, I have an app't with neuro on the 8th, I want to try it too! Good Luck!
        Maria

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          #5
          Me too ms man- I saw my neuro a few days ago and he is going to check on getting that for me.

          I see a lot of info on these boards here (just starting to get through it all). But from what I have seen so far--I'm ready to try it too!!

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            #6
            Glad to see people posting on this thread.I know it's very new but I've been hearing great things about Ampyra.
            Without hope there's nothing.

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              #7
              ampyra

              definitely try it, I have brrn on it 2 wks & just started 2 a day, can definitely see an improvement in walking & balance & haven't had the full dose except or the pat 2 days. Spasticity still but hopeful that will improve when have more of the full dose. I started a tread the day I started it. Good Luck, keep us posed so we can all help eachother. No side effects @ all,

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                #8
                Originally posted by JMom View Post
                definitely try it, I have brrn on it 2 wks & just started 2 a day, can definitely see an improvement in walking & balance & haven't had the full dose except or the pat 2 days. Spasticity still but hopeful that will improve when have more of the full dose. I started a tread the day I started it. Good Luck, keep us posed so we can all help eachother. No side effects @ all,
                Glad that it's working out for U.Hope it does the same for me.I'm supposed to do 2 a day when I get it.Why haven't you done the full amount?
                Without hope there's nothing.

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                  #9
                  AMPRYA

                  Originally posted by ms man View Post
                  Glad that it's working out for U.Hope it does the same for me.I'm supposed to do 2 a day when I get it.Why haven't you done the full amount?
                  I just started full dose now after tonight, 4 days ago. Not really sure why I didn't start on full dose except I think they wanted to watch to see for side effects. i am thin for my height so I think it might of been too much 4 me. No side effects so far, I heard you have to be on it a full 2 wks b4 u get all the benefits. Hope u r doing well!!! Keep us posted!!

                  PS Used to live in N Bergen after college, loved the town I lived in.

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                    #10
                    I have been on it for 2 months now and am happy to say I have not had any side effects. I wasn't sure it was doing anything for me until I missed taking it one morning and about half way through the work day I noticed I was wiped out! I don't think it is a miracle drug but I think it has helped me.

                    I had some issues with my prescription provider in the beginning and had make many calls before I finally got the medication shipped to me but the refills have been a breeze. I only hope that when it's time to renew the rx it goes smoothly!
                    Falling down is easy... getting up not so much

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                      #11
                      Originally posted by JMom View Post
                      I just started full dose now after tonight, 4 days ago. Not really sure why I didn't start on full dose except I think they wanted to watch to see for side effects. i am thin for my height so I think it might of been too much 4 me. No side effects so far, I heard you have to be on it a full 2 wks b4 u get all the benefits. Hope u r doing well!!! Keep us posted!!

                      PS Used to live in N Bergen after college, loved the town I lived in.
                      Thanks for your input.North Bergen is still a pretty cool, diverse town.It's a lot like NYC.It's only 7 miles from Times Square and yet feels like a suburb.

                      Keep up posted of your Ampryl experience.I'll do the same.
                      Without hope there's nothing.

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                        #12
                        I'm waiting for my first shipment.I'll pop and post as soon as I get it.
                        Without hope there's nothing.

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                          #13
                          I recieved my first shipment of Ampyra and took my first tab at 8:58 AM.I'm taking my next pill at about 8:59 PM.
                          Without hope there's nothing.

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