What does an MS Hug feel like? What can the doctors do for it?
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it feels like u cant take a deep breath cuz when u do ur rib cage or back or chest or side hurts when u do take a deep breath. sumtimes u dont have to take a deep breath to feel the pain. muscle relaxers i think. i hydrate and rest. and dont drink diet coke. 4 me,that stuff in it makes it worse,aspartme or however u spell it. thats how it the hug feels for me.
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Originally posted by juliebrush View Postit feels like u cant take a deep breath cuz when u do ur rib cage or back or chest or side hurts when u do take a deep breath. sumtimes u dont have to take a deep breath to feel the pain. muscle relaxers i think. i hydrate and rest. and dont drink diet coke. 4 me,that stuff in it makes it worse,aspartme or however u spell it. thats how it the hug feels for me.RRMS Diagnosed December 2009,
on Copaxone December 2009-October 2011 -
Starting interferons hopefully soon.
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Originally posted by buckfield View PostHow long do they last? I am trying to figure out if I've had one.
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Originally posted by juliebrush View PostSometimes weeks,sometimes a day. But do not panic,hydrating seems to help. And also,if u r not restricted from using magnesium,got to health food store,get something called "calm".....mix it in sum water b4 bed,take it nightly until loose. It relaxes the muscles,of course check with ur doc,if they even know what it is. but,do not panic. i promise u it is okay.
A less expensive, but just as effective, alternative to Calm is plain Magnesium Citrate powder (not tablets, not capsules) which is also stirred into water and drunk before bed. I use it for spasticity (legs, shoulders), and it does help.
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Originally posted by juliebrush View PostSometimes weeks,sometimes a day. But do not panic,hydrating seems to help. And also,if u r not restricted from using magnesium,got to health food store,get something called "calm".....mix it in sum water b4 bed,take it nightly until loose. It relaxes the muscles,of course check with ur doc,if they even know what it is. but,do not panic. i promise u it is okay.
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The MS hug I don't consider as nervewracking as some other symptoms - like the nerve pain in my skin, I think it's called dysthesia or something like that. A burning pain. With that, I can't get comfortable - it hits my back, so there is no getting comfortable, and it hits my arms, so that's what gets me into anxiety attacks. The MS hug, well, I can reason that out - it's not as painful for me as the dysthesia, and I know it'll go away.Diagnosis: May, 2008
Avonex, Copaxone, Tysabri starting 8/17/11
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MShug affects me a bit differently as well. It doesn't hurt - it feels one of two ways:
1. Like I am wearing a girdle. I feel really tight in my midsection like my body is being squished... but I almost find this to be comforting.
2. Like someone wrapped a belt around my thigh and was yanking it tight. This one is more bothersome. The 'Area" that I feel the hug in is very specific and "thin" thus the Belt comparison.
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I have had this for two solid years. 24/7. It wakes me up at night with pain. At first I thought it was my stomach burning so bad that I could feel it through to my back. $1200 worth of testing later, nothing is wrong with my stomach. Pretty soon I realized it was coming from my back. Painful burning, doubled over, needing to vomit, like I was wearing a tight, tight belt. X-ray of my back showed nothing wrong.
Soon I learned that stress expanded the pain from right under my breasts (where I imagine my stomach is) to my armpits down to my hips. Like wearing an iron girdle that gets tighter and tighter, so I can hardly breathe. Excruciating pain. Kill yourself pain. I was on Mobic for pain for over a year. Different muscle relaxers. My neurologist had no clue--I mentioned MS hug and he's never heard of it. I am now living on muscle relaxers. Valium works well but you get a tolerance and need a higher and higher dose, which isn't easy to get. I take something called Tizanidine (?) that dulls down enough that I can function. If I take a half I can stumble around. If I take a whole I have to go to sleep.
Is there no solution for this symptom? Because this is not a gentle pressure or tingling for me. This feels like I am being squeezed in half by a belt, like something from a "Saw" movie. I did a three-day stint of oral prednisone with no effect. I'm starting to think a longer stint of IV steroid--which I hate steroids more than anything, but I cannot continue like this.Proud Mom of three kids!
dx'd 1996
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Mine can be a couple of different things. Like muscle spasms in my back and ribs like in a band, but it goes all the way around and squeezes - mine doesn't always make me feel like I cannot breath. Mine is typically higher - like bra line - so it feel more like a mock heart attack. First time was pretty scary. My BP gets really high too - because it really hurts. I also can get them around my middle too - like a girdle.Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~
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Originally posted by Hawkgirl View PostI have had this for two solid years. 24/7. It wakes me up at night with pain. At first I thought it was my stomach burning so bad that I could feel it through to my back. $1200 worth of testing later, nothing is wrong with my stomach. Pretty soon I realized it was coming from my back. Painful burning, doubled over, needing to vomit, like I was wearing a tight, tight belt. X-ray of my back showed nothing wrong.
Soon I learned that stress expanded the pain from right under my breasts (where I imagine my stomach is) to my armpits down to my hips. Like wearing an iron girdle that gets tighter and tighter, so I can hardly breathe. Excruciating pain. Kill yourself pain. I was on Mobic for pain for over a year. Different muscle relaxers. My neurologist had no clue--I mentioned MS hug and he's never heard of it. I am now living on muscle relaxers. Valium works well but you get a tolerance and need a higher and higher dose, which isn't easy to get. I take something called Tizanidine (?) that dulls down enough that I can function. If I take a half I can stumble around. If I take a whole I have to go to sleep.
Is there no solution for this symptom? Because this is not a gentle pressure or tingling for me. This feels like I am being squeezed in half by a belt, like something from a "Saw" movie. I did a three-day stint of oral prednisone with no effect. I'm starting to think a longer stint of IV steroid--which I hate steroids more than anything, but I cannot continue like this.
This is the worst symptom I've ever had.
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