Saw the neuro yesterday for the first time

[saywhat]

He said more than likely we are dealing with MS, but this is a very atypical case.

So I guess not an official diagnosis, but he is an MS specialist so he knows his stuff. He said it probably is MS.

It's just odd because my LP came back negative, I have 2 lesions, one on my brain stem that is fairly large, and one on my cord at C2. (Not the typical areas of MS, nor the typical shape/size of MS lesions.)

I am going to be starting on Avenox in the next couple of days.

I found out that I'm more than likely going to lose my job, I'm out of money and we're living off of credit cards (I'm a single mom to a 2 year old.) I'm stressed out of my mind. I have no help around here so I'm paying for my little girl to attend daycare so I can have a few days to rest. I can't pay for it much longer though. I feel so trapped and lonely and now people are telling me how horrible you feel after doing the Avenox injections and I just can't handle one more thing. :'(

I failed the neuro exam. I have severe weakness on my entire right side, including my eyeball. They gave me another dose of SoluMedrol right in the office because I was doing so horribly. I'm just so tired and stressed. We need to move, I can't keep doing all of the stairs we have, but how I am supposed to pack everything and move when I can barely walk or move my entire right side? Can I just cry? I hate this disease. It's ruining my life.

[maximumlite]

Hi shutterbug,
Have you ever heard of wish upon a hero? It is a place you can post a wish or grant a wish, I check every week to see if there are things like helping people move, a ride or odd jobs to help someone out, it is a neat thing they do,, here is the URL to the site, maybe you can put a wish up for someone to help you move, as I'm sure there are more people like me wanting to help a person in need.
{{URL}}wishuponahero.com{{URL}}
I hope you can find some help

[kikiblue]

Ask your doctor about Copaxone instead of the Avonex. Copaxone doesn't have the "flu like" symptoms. It is daily injection, but for me it is well worth it.

Not to be nosey, but do you think you will lose your job because of MS?

I wish the best for you and hope you are feeling better soon.

[saywhat]

Not to be nosey, but do you think you will lose your job because of MS?

Yes. The issue is, I have used up all 12 weeks of allowed leave in the last 12 months. I've had 2 surgeries within the last year and now with this flare up that is still getting worse at 6 weeks, there's just no way I can go back to work anytime soon. I have super, super limited use of my right arm/hand/fingers and with the double vision, severe fatigue, etc. , there's just no way I can work right now but my leave ended Friday and I have "exhausted all available leave hours." per HR. Just waiting to hear that I'm fired for not returning.

[kikiblue]

Did you talk to your employer on Friday and let them know that you were unable to return? Sometimes the company will work with you, although I don't think mine would. I have been off since 8/15 with an expected return date of 11/1.

Perhaps you can get social security or at least medicaid quickly.

It is rough to be hit with all of this at one time.

I will keep you in my prayers.

[jskmssss]

Hi shutterbug,

So sorry to hear u aren't feeling well.
Is it possible to move in with family
Members that would be able to assist
You