This is my first post out here. I'm at a loss and not sure where to turn from here. I was DX'd with breast cancer in May 2009. Double mastectomy in June and started chemo in July. Prior to this I was working a very demanding (factory, 3rd shift) job. I bounced back from things fine but by Nov was barely able to function. Doc finally checked Vit D in Feb and found it was almost non-existant. By spring I was better and working out 5-6 days a week and back to work full-time. Fast forward to Oct that year (2010) I had fallen down the stairs. It was like my legs just didn't work. This continued and the energy I'd had was beginning to go downhill. Winter was miserable because I'd lose all feeling in my fingers ... they'd turn white. Raynauds which I'd been DX'd with in 1998.
Last July I'd noticed at work that when I tried to pick up the pen my fingers just didn't work. It's like my hand locked up. I dismissed it as stress. I was back at my onc because of pain in my torso and fatigue that was setting in. He said it was normal. By the end of the year I was just totally exhausted. I'd lost my job.
Feb of this year I went back to bartending prat-time. The falling continued. I have learned to either avoid or be very careful on stairs. I'd trip behind the bar. By April if I'd crouch down I could barely get up. New onc referred me for a bone scan because I was having pains shooting down left leg and my hips were killing me. It came back with low grade DJD. I'd have to take the next day to recouperate after working the night before. My roommate and I went for a walk one day and I spent the next 3 on couch in excruciating pain. The supperclub closed the weekend of Memorial Day. This was also a really stressful week between my fiance and I. By Friday I'd gotten into work and couldn't warm up but stood there shaking. I went home and then spent the weekend on the couch under 3 blankets with shaking with fever and shaking uncontrollably. By Monday I was better and Tuesday back to somewhat normal.
In the past 2 months or so my tripping has gotten worse. The pain in my hips and legs keeps me up tossing all night. I'm walking funny ... right leg mostly. I put a hand on things to steady myself. Some days are good but most days I'm drained by early afternoon. Forget even vacuuming ... it exhausts me. I wake up at night with my upper left arm numb. I wake up in the morning with feet, toes, right hand, and/or fingers numb and/or tingly. My right foot does what I can only describe as jumping. It's like I get hit with an electrical prodder. It happens a couple times then stops. I've begun stuttering and lose words mid-thought. I feel so incompetent.
It's like my mind just doesn't work. I know what I need to say it just doesn't come out or I totally forget.
I itch when I get stressed. Playing the piano has become a chore. I used to type 80 wpm but now have to slow down or I have typo's. Last week at lunch I dropped a whole glass of soda. Just dropped right out of my hand.
I'm beyond exhausted, I can't think straight but my body just isn't "me". My legs feel tight. It's like when I was in high school and I'd have to get up in the middle of the night to walk because they felt like they had wires running through them. Sitting here now my right arm feels so odd ... disconnected and numb.
I've been to the doc ... numerous docs ... only 2 have taken me seriously. My onc just referred me over to pain management clinic. The pcp I established with asked if I'd tried an anti-depressant. I don't need them nor can I take them as I'm bi-polar. I want to know what's wrong but can't get any of them to say anything except bloodwork is normal and there's no explanation.
Sorry so long. I'm scared and not sure what to do. My fiance wants me to get in for an MRI but I can't get a doc to take me seriously.
Last July I'd noticed at work that when I tried to pick up the pen my fingers just didn't work. It's like my hand locked up. I dismissed it as stress. I was back at my onc because of pain in my torso and fatigue that was setting in. He said it was normal. By the end of the year I was just totally exhausted. I'd lost my job.
Feb of this year I went back to bartending prat-time. The falling continued. I have learned to either avoid or be very careful on stairs. I'd trip behind the bar. By April if I'd crouch down I could barely get up. New onc referred me for a bone scan because I was having pains shooting down left leg and my hips were killing me. It came back with low grade DJD. I'd have to take the next day to recouperate after working the night before. My roommate and I went for a walk one day and I spent the next 3 on couch in excruciating pain. The supperclub closed the weekend of Memorial Day. This was also a really stressful week between my fiance and I. By Friday I'd gotten into work and couldn't warm up but stood there shaking. I went home and then spent the weekend on the couch under 3 blankets with shaking with fever and shaking uncontrollably. By Monday I was better and Tuesday back to somewhat normal.
In the past 2 months or so my tripping has gotten worse. The pain in my hips and legs keeps me up tossing all night. I'm walking funny ... right leg mostly. I put a hand on things to steady myself. Some days are good but most days I'm drained by early afternoon. Forget even vacuuming ... it exhausts me. I wake up at night with my upper left arm numb. I wake up in the morning with feet, toes, right hand, and/or fingers numb and/or tingly. My right foot does what I can only describe as jumping. It's like I get hit with an electrical prodder. It happens a couple times then stops. I've begun stuttering and lose words mid-thought. I feel so incompetent.
It's like my mind just doesn't work. I know what I need to say it just doesn't come out or I totally forget.I itch when I get stressed. Playing the piano has become a chore. I used to type 80 wpm but now have to slow down or I have typo's. Last week at lunch I dropped a whole glass of soda. Just dropped right out of my hand.
I'm beyond exhausted, I can't think straight but my body just isn't "me". My legs feel tight. It's like when I was in high school and I'd have to get up in the middle of the night to walk because they felt like they had wires running through them. Sitting here now my right arm feels so odd ... disconnected and numb.
I've been to the doc ... numerous docs ... only 2 have taken me seriously. My onc just referred me over to pain management clinic. The pcp I established with asked if I'd tried an anti-depressant. I don't need them nor can I take them as I'm bi-polar. I want to know what's wrong but can't get any of them to say anything except bloodwork is normal and there's no explanation.
Sorry so long. I'm scared and not sure what to do. My fiance wants me to get in for an MRI but I can't get a doc to take me seriously.
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