I was DX in Late OCT. 2010 found my Neuro in Nov.2010 and have liked her ever since...(except I have never really understood what she means by aggressive MS.)
Here is the short of me...I have 7 brain lesions and so many spinal lesions my Neuro says she won't count them. I started Beta in Dec. and had my first round of steroids in Nov. I had my next round in Jan, April(?), June, Aug. I stopped Beta in late July do to a med reaction.
In my last MRI I have a new spinal lesions and my brain stem lesion had grown in size...I guess it was already large...hence the steroids in June because it was still active from the flare in April(?).
So now my Neuro doesn't know what to do with me and is sending me to what is the closest "MS" Neuro in my area...he does studies and trials and stuff...
I know the I should be grateful my Neuro was honest and said she didn't know what to do with me. BUT...REALLY< REALLY?
She said that I'm VERY AGGRESSIVE MS ...so WTH does the mean? thats what I'm asking all of you...she said I'm RRMS but can i be both? my appointment isn't till SEPT 8th and the wait may kill me..
thanks for reading my book Allyson
Here is the short of me...I have 7 brain lesions and so many spinal lesions my Neuro says she won't count them. I started Beta in Dec. and had my first round of steroids in Nov. I had my next round in Jan, April(?), June, Aug. I stopped Beta in late July do to a med reaction.
In my last MRI I have a new spinal lesions and my brain stem lesion had grown in size...I guess it was already large...hence the steroids in June because it was still active from the flare in April(?).
So now my Neuro doesn't know what to do with me and is sending me to what is the closest "MS" Neuro in my area...he does studies and trials and stuff...
I know the I should be grateful my Neuro was honest and said she didn't know what to do with me. BUT...REALLY< REALLY?
She said that I'm VERY AGGRESSIVE MS ...so WTH does the mean? thats what I'm asking all of you...she said I'm RRMS but can i be both? my appointment isn't till SEPT 8th and the wait may kill me..
thanks for reading my book Allyson
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