Hi everyone,
So happy and relieved to have found this forum!
I won't tell my entire story right now but just had a question about Multiple Scleroris and TN. I have both (oh, lucky me!) and was recently told that there's not much that can be done for the excruciating pain of Trigeminal Neuralgia when you have MS. That really scares me because I can't imagine a future with this type of pain along with my MS symptoms.
Right now my pain is being managed by a high dose of Neurontin but at it's peak last Summer, even Morphine didn't lessen the pain. I'm hoping there's some type of procedure or surgery if the TN gets progressively worse down the road but was told by another person with TN that what works for the typical TN patient doesn't work for those who have both diseases.
Do any of you have TN and MS? Is there any hope for the pain as the condition progresses?
Thanks in advance for your help.
~ Vicki
So happy and relieved to have found this forum!
I won't tell my entire story right now but just had a question about Multiple Scleroris and TN. I have both (oh, lucky me!) and was recently told that there's not much that can be done for the excruciating pain of Trigeminal Neuralgia when you have MS. That really scares me because I can't imagine a future with this type of pain along with my MS symptoms.
Right now my pain is being managed by a high dose of Neurontin but at it's peak last Summer, even Morphine didn't lessen the pain. I'm hoping there's some type of procedure or surgery if the TN gets progressively worse down the road but was told by another person with TN that what works for the typical TN patient doesn't work for those who have both diseases.
Do any of you have TN and MS? Is there any hope for the pain as the condition progresses?
Thanks in advance for your help.
~ Vicki
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