seizures and ms?? possible?

[sunshine008]

good morning,

so, i have a new question...... does anyone experience seizures due to their ms, not meds your on. just the ms?

Last night something odd happened to me. I had like the ultimate spasm attack, was really weird to say the least. I couldn't control my body. My husband said it lasted like twenty minutes.

He also said at one point it looked like i was choking he said he put his finger in my mouth (yet have absolutely no memory of this) while it was going on to avoid me from choking.

I was somewhat alert I think, yet kinda out of it.

anyway will put call into neuro about it. still waiting to hear back from his office about something else. he will def. get on me about taking the avonex i've had sitting in my fridge. still on fence about it.

anyway any input would be appreciated.

thanks!!!

[Spydre]

About 3% of people experience seizures due to the MS. It sounds like you had a partial complex siezure - a woman I worked with years ago had those. In my case, the MS just caused my seizure threshold to be lowered - I was controlled for 10 years prior to the MS, but now I'm only controlled if I'm on an additional medication.

[Shashi]

It does sound like you had a seizure. You need to get it checked out so you can get treatment for it.

I have what I believe are simple partial seizures. (I wasn't able to afford the EEG I needed to diagnosis them.) I smell the smell of wood smoke, see colored lights with my eyes closed, hear auditory hallucinations (my brother calling my name), and stiffen up and have increased tremors on my right side that lasts for 15-20 seconds.

Hugs!

Lisa

[Des]

Yes, seizures can be a sx (symptom) of MS. The first one I had was a grand mal where I fainted, my arms and legs were flopping around, and the EMT brought me to the emergency room. I had never heard of seizures and MS, and I was shocked.

After trying a bunch of anti-seizure meds, most of which made me sleep 22 hours a day, I started taking Phenobarbital, which helps.

[sunshine008]

hi guys thanks for the info.

spoke to my neuros office the nurse practioner there. she said it sounds very much like a seizure occured.

so their scheduling me an eeg, idk what the cost will be. so far they've been pretty good with lowering prices for me. hence no insurance.

i had a great day yesterday following a bad night. that's kinda how life rolls. one day's a nightmare next can be really good.

i just keep holding onto the really good to ride out the not so pleasant.

i'm a bit nervous though that it'll happen during day when i'm with my child. not sure how to handle that. dh said just make sure she has my number in her phone, the neighbor's number etc.

anyone ever just have one and than it never happens again???

[hotmom]

I have epilepsy and ms I started having them not long after my diagnosis of ms. When mine started they were at night only but now I have had my last two in the daytime. I can tell you that when mine were coming on I new it. I started to have a real bad feeling come over me and it scared me maybe 2 or 3 minutes later it started. I have read about having feelings before it happened but now I can say it does. You will know and with the right meds it wont happen again.

[freeinhou]

Hi sunshine -

I had 3 grand mal seizures 2/93 - 9/94. I went on Depakote in 1994. No seizures since.

The only thing the medical community and I could come up with is that it must have been related to MS. The first one was timed by a person at an interstate rest area at 8 minutes. The other two were when I was alone.

Yes, they're violent. At least so I've been told. I wasn't mentally there for them, but I almost bit my tongue off, and broke my foot on one of them.

I know - there's no medical known ties between MS and seizures. But I was a healthy young male with no history of seizures and was diagnosed with MS in early 1988.

Fortunately - this is one result of MS that went away. There's been others that have gone away, but there's been others that have gotten worse.

Tom

[KoKo]

Some info from the National MS Society about Seizures and MS:

http://www.nationalmssociety.org/abo...res/index.aspx

Take care,
KoKo

[sunshine008]

i'm so sorry to hear you both went thru them. for me personally i had already begun my night spasming and it just moved into a way more intense whole body thing. so i didn't have any feelings before hand.

a rest stop?? sheesh that's rough. mine lasted about 20 min my husband said. i was there for a majority of it i think. after i was so tired yet my body was still jumpy and unable to calm down.

they said same they have on clue why ppl w/ms get them. i read the ms society link prior also. yet thank you.

again i think my husband was more freaked than me. afterwards he needed water, food, had to sit down. i dont mean to laugh yet i said to him are you going to be ok? should we get u somewhere?? i remember at first him just thinking i was really cold because i was shivering

[Des]

I know - there's no medical known ties between MS and seizures. But I was a healthy young male with no history of seizures and was diagnosed with MS in early 1988.
Tom

My neuro, an MS specialist, said seizures were rare but not unheard-of in MS. Koko's citation is a good reference from the MS Society.

[daisy.girl]

I am diagnosed with MS, Complex Partial Seizures and Severe Migraines.

I think they are all related somehow!!

[sunshine008]

what do you take for it? and sorry that's alot of stuff

[Spydre]

Hi sunshine -

I had 3 grand mal seizures 2/93 - 9/94. I went on Depakote in 1994. No seizures since.

The only thing the medical community and I could come up with is that it must have been related to MS. The first one was timed by a person at an interstate rest area at 8 minutes. The other two were when I was alone.

Yes, they're violent. At least so I've been told. I wasn't mentally there for them, but I almost bit my tongue off, and broke my foot on one of them.

I know - there's no medical known ties between MS and seizures. But I was a healthy young male with no history of seizures and was diagnosed with MS in early 1988.

Fortunately - this is one result of MS that went away. There's been others that have gone away, but there's been others that have gotten worse.

Tom

My seizures started in 1990. That first seizure was waiting for the boss at high school when I was 16. I remember the hamburger meat tongue well. I had one seizure in the car while driving. Evidently my medication dosage wasn't as high as I needed it to be. Totalled my car that I had "inherited" from the then deceased grandmother. Another seizure I had I fell backwards down a flight of steps. Could barely walk but the doctor wouldn't prescribe me a painkiller.

My seizure that made it clear I was no longer going to be controlled took the cake though - seizures are supposed to be controlled, so I had just gone grocery shopping and stopped at Office Depot. I had been in the store no more than a minute (I remember telling the salesperson what I needed) and had the seizure. I took out one of their displays and broke my tailbone doing it.

I haven't had a seizure since switching off the Avonex, and since adding a second medication.

Sunshine, keep in mind that the Avonex itself can cause seizures.

[Sammie]

I had 8 grand maul seizures 3 yrs ago while on vacation at a road side stop. I had to be air lifted back to Bend, Oregon. I had no idea what happened so I was scared. When I came to I wasn't scared because I had no idea what happened but as time went on it scared the hell out of me.

I haven't had one since but it was caused from my MS. I've had MS for 37 yrs & I had no idea that MS can cause seizures. I'm still learning. I'm no longer on medication which I'm glad. For me I'm willing to take the chance of another seizure rather than take the medication for it. I have a great specialist that watches me very close. I can't take a lot of the medication that they give people with MS because of the past seizures. They don't want me to have another one & I don't either.

I have a warning before the seizure so I'm lucky that way. My husband has had to tell me things I said & did because I don't remember anything. I know it effected me because I don't have a good memory any more & my speech was somewhat effected.

Hang in there & listen to your doctors.
Sammie

[Bob698]

I can get a mild form of seizure if my core temp gets too low. Think shivers times 100. They can get so bad that its almost impossible to move.
I can work outside in the winter as long as I don't stop for a break, otherwise I need to be careful. FWIW, heat doesn't bug me.