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hi anyone have??

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    hi anyone have??

    a new symptom of mine came out a few days ago burning on my chest and stomach and arms?? It feels just like a sunburn, yet clearly i have not been in the sun.

    anyone else have this fun symptom??
    Jen Dx'd 5/11
    "Live each day as if it were your last"

    #2
    FUN FIRE

    I DO HAVE THE BURNING.. BUT NOT ON THE CHEST.. MINE IS ON MY LEFT ARM AND SHOULDER, THEN TO MY NECK AND BACK.. SORRY YOU ARE GOING THRU THIS AS IT IS A PAINFUL SYMTOM..

    I DO TAKE CYMBALTA FOR NERVE PAIN, SEEMS TO HELP A LITTLE..(OR IM HAPPIER ABOUT IT)ALSO TIZANADINE.. TRAMADOL..BACLOFEN.. AND A FEW OTHERS.. FINDING THE HAPPY MEDIUM TO RID THE PAIN IS KEY.

    I HAVE FOUND THAT IF I KEEP MY RX SCHEDULE IT HELPS WITH THE PAIN.

    HAVE YOU CALLED YOUR DOCTOR ABOUT THIS?

    HOPE YOU GET RELIEF SOON!

    OMZONE

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      #3
      Yes I have. I got a massage years ago and the next morning I woke up with what felt like a sunburn on my neck/shoulders. I told the masseuse who thought I was allergic to the lotion/oil. But then why just that area? And there was no SIGN of a burn.

      Recently if the sun hits my skin, it can feel like needles on my skin..but then I was driving and felt a rope burn on right side of neck. Kept looking and no sign of a burn, scratch nothing. AND it was on the opposite side sun was hitting me in the car.

      You'll find lots of posts on "burning" feeling..sorry you are going through it. For me, it passes...luckily not constant.

      Warmly, Jan
      I believe in miracles~!
      2004 Benign MS 2008 NOT MS
      Finally DX: RR MS 02.24.10

      Comment


        #4
        I get the burning sensations also. Mine are in my legs and sometimes in my arms. It can be painful and extremely annoying. I take lortab for my leg pain, neurontin and baclofen. Those meds seem to help some but it there are times when it is so bad nothing helps.
        Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

        It's hard to beat a person that never gives up.
        Babe Ruth

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          #5
          Originally posted by sunshine008 View Post
          a new symptom of mine came out a few days ago...
          Any new symptom that lasts longer than 24-48 hours means a call to the Neuro.

          Flares can be subtle or huge.
          Bottom line is that quite possibly, the myelin is being attacked.

          It took a while for my MS specialist Dr to get that through my head.
          His answer was to prescribe 3 or 5 days of IV steroids to calm down the attack.

          Please tell your doc and remember to keep your doc informed so the disease process can be addressed.


          For me, the disease was very, very busy in the beginning after my diagnosis.
          Years of Copaxone, resting and understanding limits has helped keep me flare-free for a long time.

          Please, please call your doc.

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            #6
            i'm going camping tmrw....... I always have new symptoms. I'm supposed to tell the doc when I have the newer ones? Is it that everyone should take the steriods to calm down the attack on the mylein?

            I thought it was more for a comfort reason, to ease the discomfort and possible disability from an attack? sorry confused.
            Jen Dx'd 5/11
            "Live each day as if it were your last"

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              #7
              I'm on this list too. I get the "burn"in various places ....it comes and goes..i.e....right forarm (top); left forearm (bottom) near elbow, right leg calf, etc. Lately I've been thinking its spascity
              [I]Tellnhelen
              Progressive Relapsing MS

              Comment


                #8
                I now get it too. I used to just get it if I had a fever, but my last flare was this completely, and it still hasn't really gone away. Way back when (when it was just when I was feverish) my doctor told me it was nerve pain in my skin. I was originally taking 50 mg of amitryptiline for it, but with this last flare my doc increased it to 100 mg. It still isn't doing much, so I'm going to ask my doc about neurontin instead. It really acts when I get hot (again, body temperature going up) so watch yourself on your camping trip. I've tried taking narcotics for it (I have those for my fibromyalgia) but it really didn't make a dent.
                Diagnosis: May, 2008
                Avonex, Copaxone, Tysabri starting 8/17/11

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