I've been very busy for the last 30+ days writing my book with progress is going very well. Honestly though, between dealing with the worsening symptoms, sleep deprivation or sleep over kill, and working on all aspects of this book myself, I've been left constantly exhausted.
I expect to have my book to the publisher by month's end. The title is, Evaluate, Adapt, And Overcome: Accept No Limits In Life, subtitle tag "Craig recounts his story of coming to terms with total disability and outlines specific advice that helped him along the way." It turned out to be 12 chapters and 180 pages, 6x9 inch paperback. I have several chapters dealing with
"The Adversity -
Keeping in mind I do have a sick sense of humor, but have learned many lessons along the way which might benefit others.
Due to my progression, I've been doing a great deal of research and have learned not only my diseases, but potentially MS, are now considered part of a multi-condition/disease vs. being independent of themselves. (Gee! Didn't we have that conversation about MS about five years ago?) The new name is, "MSA" Multiple System Atrophy, and involves many of the exact same symptoms of MS. "Included in this MSA family are coexisting neurodegnerative disorders that manifest collective symptoms of autonomic (Shy-Drager syndrome), ataxic (cerebellar), and extrpyrmidal (parkinsonian-like) dysfunctions," According to Mayo Clinic.com's definition.
The symptoms of Olivopontocerebellar Atrophy and Parkinsonian-like disease are what emulate the major symptoms of MS so closely for imbalance, disorientation, ataxia ambulation and many others. Google Multiple System Atrophy and take a look at the similarities. No wonder the neuros are so confused on trying to diagnose. On top of all that, the symptoms of my Dysarthria have gotten aggressively worse recently. Another diagnosis many MS patients receive and never really have explained to them, dealing with the ability to talk, eat, swallow, etc. Check that out also.
OK! Way more information than I had originally desired to share, but important none-the-less. Keeping you all in my thoughts and prayers.
I expect to have my book to the publisher by month's end. The title is, Evaluate, Adapt, And Overcome: Accept No Limits In Life, subtitle tag "Craig recounts his story of coming to terms with total disability and outlines specific advice that helped him along the way." It turned out to be 12 chapters and 180 pages, 6x9 inch paperback. I have several chapters dealing with
"The Adversity -
- Diagnosis Journey;
- Additional Health Hurdles;
- Emotional and Psychological;
- Disability's Impact on Life; and
- Dealing With Doctors and Administration."
Keeping in mind I do have a sick sense of humor, but have learned many lessons along the way which might benefit others.
Due to my progression, I've been doing a great deal of research and have learned not only my diseases, but potentially MS, are now considered part of a multi-condition/disease vs. being independent of themselves. (Gee! Didn't we have that conversation about MS about five years ago?) The new name is, "MSA" Multiple System Atrophy, and involves many of the exact same symptoms of MS. "Included in this MSA family are coexisting neurodegnerative disorders that manifest collective symptoms of autonomic (Shy-Drager syndrome), ataxic (cerebellar), and extrpyrmidal (parkinsonian-like) dysfunctions," According to Mayo Clinic.com's definition.
The symptoms of Olivopontocerebellar Atrophy and Parkinsonian-like disease are what emulate the major symptoms of MS so closely for imbalance, disorientation, ataxia ambulation and many others. Google Multiple System Atrophy and take a look at the similarities. No wonder the neuros are so confused on trying to diagnose. On top of all that, the symptoms of my Dysarthria have gotten aggressively worse recently. Another diagnosis many MS patients receive and never really have explained to them, dealing with the ability to talk, eat, swallow, etc. Check that out also.
OK! Way more information than I had originally desired to share, but important none-the-less. Keeping you all in my thoughts and prayers.
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