Warning: this is a long one and it gets pretty whiny.
I know everyone's MS is different. I am really trying to keep going but I have gotten stuck. Lets start with the fact that I almost hit a car today. I absolutely did not see it. My daughter had to shout to get my attention. That was a final straw for her - she is 17 and now plans to go everywhere with me. She has been complaining about my "blanking out" but I don't know how to get the dr to understand or which dr I should discuss my current symptoms with.
I can not hold a thought - I have had cognitive issues for awhile and have been through testing. I am afraid to even try to say something out loud because I am not sure what will come out. I can not get focused.
I started having more vision related issues about a month ago, but I have hesitated going to an eye dr. I am not sure who to go see and I am worried about the results.
Fatigue - I know we all hate it. I don't want to get up in the morning. I want to go back to bed all day. I feel like the fatigue is what is making everything else worse.
I know this sounds awful but I wouldn't mind being in the hospital just so I can get some rest.
I don't have the option of laying down a lot. I have children at home and my husband has been disabled for 15 years - he tries to help sometimes but I don't think he gets it. They are all used to me just sucking it up and I don't the the power to suck it up left.
I take my medications faithfully. I stretch and take a quality multivitamin daily. I don't drink or smoke (never have). I eat a pretty healthy diet. I am a vegetarian (including dairy). I tried gluten free for a year - no changes. I take copaxone, ampyra, provigil and keppra (for uncinate seizures)
I don't know what to do at this point. I don't go beyond a 5 mile radius of my house and I choose where I do go by how much walking may be involved. I get up and dressed every day and try to be purposeful so that I don't become depressed. Currently, it doesn't seem to be working. I am not a person that is usually sad or pessimistic but right now I am really frustrated.
I know we all have our own things to deal with but I could really use some advice and encouragement. This site seems to be the only place where others might understand what I am going through.
I know everyone's MS is different. I am really trying to keep going but I have gotten stuck. Lets start with the fact that I almost hit a car today. I absolutely did not see it. My daughter had to shout to get my attention. That was a final straw for her - she is 17 and now plans to go everywhere with me. She has been complaining about my "blanking out" but I don't know how to get the dr to understand or which dr I should discuss my current symptoms with.
I can not hold a thought - I have had cognitive issues for awhile and have been through testing. I am afraid to even try to say something out loud because I am not sure what will come out. I can not get focused.
I started having more vision related issues about a month ago, but I have hesitated going to an eye dr. I am not sure who to go see and I am worried about the results.
Fatigue - I know we all hate it. I don't want to get up in the morning. I want to go back to bed all day. I feel like the fatigue is what is making everything else worse.
I know this sounds awful but I wouldn't mind being in the hospital just so I can get some rest.
I don't have the option of laying down a lot. I have children at home and my husband has been disabled for 15 years - he tries to help sometimes but I don't think he gets it. They are all used to me just sucking it up and I don't the the power to suck it up left.
I take my medications faithfully. I stretch and take a quality multivitamin daily. I don't drink or smoke (never have). I eat a pretty healthy diet. I am a vegetarian (including dairy). I tried gluten free for a year - no changes. I take copaxone, ampyra, provigil and keppra (for uncinate seizures)
I don't know what to do at this point. I don't go beyond a 5 mile radius of my house and I choose where I do go by how much walking may be involved. I get up and dressed every day and try to be purposeful so that I don't become depressed. Currently, it doesn't seem to be working. I am not a person that is usually sad or pessimistic but right now I am really frustrated.
I know we all have our own things to deal with but I could really use some advice and encouragement. This site seems to be the only place where others might understand what I am going through.
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