why would ms be used with tumefactive?

[sloth]

HI I read on here people dx'd with "tumefactive" ms?
I read def' on google, inflamation...but isnt all ms caused by inflamation?

Whats the difference of ms and t. ms?

Thanks

[KoKo]

Hello Sloth

The way I understand it, tumefactive MS has an uncommon lesion formation. It presents with a large mass, much larger than usual MS lesions and may be confused with a brain abcess or metastasis. A brain biopsy is often times done to determine what it is.

I think that's the main difference - the unusually large mass as opposed to smaller lesions spread out in various locations. I think I read where it can turn into RRMS over time.

Maybe others more knowledgeable will respond.

Take care,
KoKo

[onlyairfare]

My doctors said pretty much what you said KoKo. I have one lesion that looks like a brain tumor that most of them think is "tumefactive MS." My other MRI lesions look like "normal MS." I don't think they have any idea why the lesion looks like it does or what causes it, just that when it didn't grow over time, most think it is not a brain tumor after all.

[sloth]

thank you
I googled but it didn't really give me much I appreciate it

[jazzgirl]

Here is one of the easiest descriptions I found to describe tumefactive MS. It came from the journal Multiple Sclerosis: Tumefactive multiple sclerosis (MS) is a rare form of demyelinating disease. The natural course of the disease has been characterized as presenting with a mass-like demyelinating lesion converting to typical relapsing-remitting disease with future exacerbations.

Sometimes it is diagnosed as a brain tumor as it looks that way on a scan. A brain biopsy is also sometimes performed to differentiate between the two (brain tumor vs. MS).

[Jenni O]

I am absolutely amazed at the wealth of information that all of you give me on a daily basis. Thank you all for guiding and teaching me...as I am still such a "newbie"!!!

[hunterd]

JENNIO, I HAVE HAD MS FOR 10 YEARS, AND I`M AMAZED AT THE KNOWLEDGE AND SUPPORT HERE! THIS IS TRUELY AN AMAZING SITE!!!

[SherylWVa]

Tumefactive MS

I just saw my doctor yesterday that was the first time She explained what Tumefactive MS is. I was diagnosed Feb. 14, 2010. After several days of not being able to talk without slurring or at all I finally went to get checked. CT was done and they told me I had a mass that was cancer. The Biopsy report showed MS. My doctor is moving out of state. There is only one other doctor that specializes in MS and she is referring me to him. She said I need a MS specialist cause I have Tumefactive MS and it is not very common and can be more aggressive. I have developed more symptoms since first diagnosed and several that I had always had but ignored are worse. She also explained because the lesions are so large they tend to look like a tumor on CT and MRI scans. Hope this helps,