A little background: Five years ago I was diagnosed with MS after having symptoms and an abnormal brain/spine MRI and months later I was also diagnosed with Lyme through 3 different tests. I am not debating what I have as I have both and therefore treating both. I have been on Minocycline and LDN for 4 years.
I chose not to try any DMD's for MS and went with LDN. When starting on LDN, I did the normal 1.5mg for 3 months increments. After being on 3mg at the 6 month mark, my doctor recommended I try 4.5mg to relieve the numbness in my fingers. I upped it to 4.5mg and sure enough the numbness subsided.
Getting to my question... has anyone ever went down with LDN and had better results? The more I read the more I hear most people who take LDN are at the 3mg mark and never went above 3mg, it appears 3mg is the magically number.
Side note: while on LDN I have had no NEW symptoms, but old symptoms appear sporadically, but resolve the same day (this is not daily).
I chose not to try any DMD's for MS and went with LDN. When starting on LDN, I did the normal 1.5mg for 3 months increments. After being on 3mg at the 6 month mark, my doctor recommended I try 4.5mg to relieve the numbness in my fingers. I upped it to 4.5mg and sure enough the numbness subsided.
Getting to my question... has anyone ever went down with LDN and had better results? The more I read the more I hear most people who take LDN are at the 3mg mark and never went above 3mg, it appears 3mg is the magically number.
Side note: while on LDN I have had no NEW symptoms, but old symptoms appear sporadically, but resolve the same day (this is not daily).
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