Who has it?
(sorry thats a bit of a joke, knowing if your here your with ms and you likely have fatigue in some form)
but may I ask you this, how have you learned to live with it? What do you do?
meds? don't push yourself? holistic approach? try and get your 8 hrs (or do you need more). Has it prevented you from working?
I'm tired of being tired, so I've almost giving up.
he is one last shot at the can. I've tried some forms of ginsing - didn't help. I tried amantadine - I felt like I had zero personality (brain dead). I tried moving my body - walking was so effortful that is was painfully unenjoyable. My new B12 shots (taken weekly) helped two months ago, but only for the first two injections, the increase in energy was no so significant there after.
ah and two months ago I was told I was anemic - who know for how long. So I'm trying to figure out that balance. I'm hesitant in taking iron daily as it constipates (I don't need more of that) also since Dr. Zamboni's news I've learned MS patients tend to have too much iron in the brain that may be causing some/all/part of our MS symptoms.
Any suggestions on how to deal with the iron?
Sorry for my ADD.
back to the fatigue: I have problems explaining myself effectively to doctors esp. the scale at which the "fatigue" affects me. When you explain your fatigue do you use the before and after approach ( i used to be able to...) or do you explain how it makes you feel, I don't know how else to express how much its affected my life. I barely work and still I have no energy. Its so frustrating.
I will soon be applying for ODSP and CPP-D so different ways in which to describe the fatigue would be awesome. I'm sure I can look back at my messy journals, but I have a feeling though I usually write in the journal when I'm at my wits end, and will sound like I am whining or neurotic.
Peace, and Happy 2010!
Patricia.
(sorry thats a bit of a joke, knowing if your here your with ms and you likely have fatigue in some form)
but may I ask you this, how have you learned to live with it? What do you do?
meds? don't push yourself? holistic approach? try and get your 8 hrs (or do you need more). Has it prevented you from working?
I'm tired of being tired, so I've almost giving up.
he is one last shot at the can. I've tried some forms of ginsing - didn't help. I tried amantadine - I felt like I had zero personality (brain dead). I tried moving my body - walking was so effortful that is was painfully unenjoyable. My new B12 shots (taken weekly) helped two months ago, but only for the first two injections, the increase in energy was no so significant there after.
ah and two months ago I was told I was anemic - who know for how long. So I'm trying to figure out that balance. I'm hesitant in taking iron daily as it constipates (I don't need more of that) also since Dr. Zamboni's news I've learned MS patients tend to have too much iron in the brain that may be causing some/all/part of our MS symptoms.
Any suggestions on how to deal with the iron?
Sorry for my ADD.
back to the fatigue: I have problems explaining myself effectively to doctors esp. the scale at which the "fatigue" affects me. When you explain your fatigue do you use the before and after approach ( i used to be able to...) or do you explain how it makes you feel, I don't know how else to express how much its affected my life. I barely work and still I have no energy. Its so frustrating.
I will soon be applying for ODSP and CPP-D so different ways in which to describe the fatigue would be awesome. I'm sure I can look back at my messy journals, but I have a feeling though I usually write in the journal when I'm at my wits end, and will sound like I am whining or neurotic.
Peace, and Happy 2010!
Patricia.
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