Announcement

Collapse
No announcement yet.

About me

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    About me

    Hello everyone reading this, My name is Jaden, I am a 16 year old with M.S. I was diagnosed 10-11 months ago, My whole left side of my body was numb, and my left eye was extremely blurry, literally nauseating. Had a spinal tap, and an MRI, and I.V. Steroids, and they were 90% sure It was M.S., but since it was my first encounter with the disease, they couldn't OFFICIALLY diagnose me. Fast forward 9 or so months, still have blurry eye, (optic neuritis) though not as bad as before.

    Around July 21st I had another flare up, I had my mom take me to the hospital, and yet again, two more MRIs, One of my brain, and one of my spine. They found a few lesions in my brain, but luckily none in my spine. They gave me IV steroids again, but after 4-5 days I went home, ever since that flare up my right wrist strength, and my whole arm coordination is off, I don't really like the term "gamer" but I play games on my PC most of my time, so it's kind of frustrating when games depend on how good your aim is, so I swapped to controller on those games. Also, if I happen to be playing a game with Mouse & Keyboard, say im focused and immersed in the game, the whole arm problem seems to just dissapear! But the second I start thinking about it, the weakness comes back, such as NOW, as I am typing this. Luckily though, it has gotten better from when I went to the hospital.

    I am not on meds,(Can't afford them) and I can't get approved for medicade because my mom takes care of my dad who says he's "disabled" but he won't go to the doctor and get an evaluation, for whatever reason nobody knows. My parents aren't even in a relationship anymore, haven't been for years. But until my dad proves he's disabled, I can't get medication to help me.


    Welp, that's me :/ Hope to meet new people online and maybe discuss some things as this is all new to me. Thanks.

    #2
    Sorry I meant to say JUNE 21st, not JULY.

    Comment


      #3
      Hello Jayden. Thanks for dropping in. Sorry to hear about your recent troubles. There are plenty of people here who have been dealing with this condition for many years. Any questions, don't hesitate to ask.

      Like you my onset presented itself with left side numbness then weakness and eventually paralysis. Luckily, I was able to bounce back though and things have been pretty stable for me.

      Stick around and see what you can learn.
      The future depends on what you do today.- Gandhi

      Comment


        #4
        Welcome to MSWorld, Jayden.

        We're glad you found us, but I'm sorry for the reason why. I know there have been others here who have been diagnosed at a young age. There are lots of old timers here who are quite knowledgeable, so if you have questions don't be shy about asking for help.

        You mentioned that you can't afford meds, but there is Help! for financial assistance available for different MS meds. Check out this link for the numbers to call for different prescriptions https://www.msworld.org/forum/showth...ial-Assistance

        Our Medication and Treatment forum outlines the DMT's (drug modfying treatments) there are today (many new ones!) https://www.msworld.org/forum/forumd...amp-Treatments

        Your neurologist will have recommendations and you will want to discuss the options available. And hopefully you and your mom can explore the financial assistance together and come up with a plan!

        I wish you well and come back often!
        1st sx '89 Dx '99 w/RRMS - SP since 2010
        Administrator Message Boards/Moderator

        Comment


          #5
          Welcome Jaden.

          Glad you found us. It may be worth talking to your neurologist and discuss treatments. Their offices can also be a good resource for potential grants that may be available to help cover treatments. It may take some effort, but don't assume you can't get treatment due to insurance reasons.

          Hope you feel free to ask questions. Lots of luck to you.
          Kathy
          DX 01/06, currently on Tysabri

          Comment


            #6
            Hi Jaden,
            Sorry about the diagnosis and the medication hurdle. I don’t know much about the financial assistance programs the big pharmaceutical companies offer, but they do exist.
            Best of luck to you.
            Paula

            Comment


              #7
              Welcome, Jayden.

              I encourage you, as others have, to look into assistance for meds. DMDs (disease modifying drugs) can help to reduce the frequency and severity of flares and delay progression of the disease.

              My MS Specialist explained it this way; meds delay progression by the reduction of the fx and severity of flares. When flares occur, lesions form. And, as you and your MS age, additional damage occurs in the existing lesions.

              Because I didn't find an effective medication for my MS until I'd had it for about 7 years, I had "too many to count" lesions by that time. I've now had MS for 18 years. I truly believe that my MS would have progressed more slowly if I had been on an effective med earlier.

              I also encourage you to consider dietary and lifestyle changes. i believe in a combination of traditional meds and alternative kinds of things. The Wahls Protocol is a good book that advocates significant dietary changes that may help. You may also want to consider toxins in your environment and learn how to reduce those.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment

              Working...
              X