I’m not sure where to start, and I’ll probably forget something, but I’ll make this as brief as possible. Before all this mess started, I was suffering from a horrible case of pulsatile tinnitus (Still am) So an MRI was done and a small aneurysm was detected.(Nothing to worry about)
A few days later I suffered a horrible all day migraine and it all started from there. Nerve pain.... Brain fog, stumbling for words, irritation, my head felt like it was on fire from electricity and since March it has all been down hill. I have developed periodic paralysis of both my hands/arm, neck and my jaw. They will all also spasm, and get stiff, sometimes lasting for hours.
On occasion my hands have a tremor and my eye will also twitch. I itch all over and at times I feel a tight band around my chest. I also have pins and needle feeling in my hands, feet and face. I have nerve pain in my jaw, neck, arm back, leg etc... I can’t forget about the exhaustion.....I take a nap daily, probably because I can’t sleep at night for the pain.
My dr has put me on Topamax and Cymbalta which does help, but we live in Phoenix and just stepping outside to check the mail in the mornings sends me into a spasm and a headache from the heat. Just cooking breakfast this morning for my kids caused my eye to twitch.
However.....My spinal MRI was clear as was my MRI of the brain that was done prior to all of this happening. My neurologist just tells me I’m stressed, which couldn’t be further from the truth and that “some people just have spasms” I guess I’m curious as to what you all would do at this point?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
A few days later I suffered a horrible all day migraine and it all started from there. Nerve pain.... Brain fog, stumbling for words, irritation, my head felt like it was on fire from electricity and since March it has all been down hill. I have developed periodic paralysis of both my hands/arm, neck and my jaw. They will all also spasm, and get stiff, sometimes lasting for hours.
On occasion my hands have a tremor and my eye will also twitch. I itch all over and at times I feel a tight band around my chest. I also have pins and needle feeling in my hands, feet and face. I have nerve pain in my jaw, neck, arm back, leg etc... I can’t forget about the exhaustion.....I take a nap daily, probably because I can’t sleep at night for the pain.
My dr has put me on Topamax and Cymbalta which does help, but we live in Phoenix and just stepping outside to check the mail in the mornings sends me into a spasm and a headache from the heat. Just cooking breakfast this morning for my kids caused my eye to twitch.
However.....My spinal MRI was clear as was my MRI of the brain that was done prior to all of this happening. My neurologist just tells me I’m stressed, which couldn’t be further from the truth and that “some people just have spasms” I guess I’m curious as to what you all would do at this point?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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