Hello. I haven't posted in years. My exacerbation keeps returning. It's been months and months. I'm unable to walk. I'm enjoying the NHS experience, but not the lockdown. Staying safe.
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Hi TXGRL.
Have you been able to see your Neurologist? Have you been able to see a Physical Therapist, or exercised as tolerated? Used Steroids?
Exacerbations can last awhile, but it is possible for recovery to take longer. If mobility is affected Physical Therapy and/or exercise can be helpful.
Take careDiagnosed 1984
“Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic
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Thank you all for responding. This relapse is identical to my first one in 2006. I had 3 rounds of oral steroids for exacerbations leading up to this one a month ago (they don't give intravenous steroids in the UK) I have spoken to the MS nurse several times this last month. I was due to start Ocrevus, until the MS Society prohibited it. I'm on Tecfidera now. My neurologist is one of the best in East Devon, and and is aware of my condition. I will get Ocrevus when allowed. I'm doing whatever stretches I can manage. I've used the available physiotherapist previously. Just waiting, keeping stretching, standing up with assistance when I can manage."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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Sorry to hear about your frequent flares.
In addition to traditional treatment, you might want to consider some alternative options, such as acupuncture, the Wahls diet, etc. Those aren't quick fixes, but might make a difference.~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Waiting...
Originally posted by Seasha View PostWelcome back TXGRL, but sorry to hear of your recent flare. Is it possible to get another round of oral steroids to calm things down a bit? Here's hoping you can manage through all this."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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Originally posted by Seasha View PostWelcome back TXGRL, but sorry to hear of your recent flare. Is it possible to get another round of oral steroids to calm things down a bit? Here's hoping you can manage through all this."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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Originally posted by Boudreaux View PostHow many courses of roids have you had so far this go round?
A good stretch routine can't be beat. It's always the go to...
I am doing stretches daily."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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SPMS
Originally posted by TXGRL View PostOne round oral steroids, and not allowed anymore.
I am doing stretches daily."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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Originally posted by REG53 View PostHello TXGIL,
I am glad you are going to get a scooter/wheelchair but I hope you get it much sooner.
Hoping you start seeing some improvements and I wish you all the best."'Who are YOU?' said the Caterpillar. Alice replied, rather shyly, `I--I hardly know, sir, just at present--at least I know who I WAS when I got up this morning, but I think I must have been changed several times since then.'" Alice in Wonderland by Lewis Carroll
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