I was at a birthday party yesterday for my grandson. It was just family. My son in law's nephew was there and asked me a question that kind of threw me. He looked right at me and asked if I was travelling yet. I had to think about this for a minute because I couldn't figure out why he would think I would be travelling.
I guess he was thinking of other widows he knows who started a life of adventures. And he probably didn't think about the MS and how it impacts lives. It didn't make me mad, just kind of surprised me that a grown man would be a little bit insensitive.
I wake up every day just wondering which appointment I would have to cancel that day or if I would be able to get dressed and get off the couch. My own son thinks I should be more active and I agree. But... well, you know how that can be. Best intentions and all that. One minute you're feeling fairly good and 5 minutes later you are so exhausted you can't imagine doing anything that day.
I know a lot of people are not tuned in to MS and I don't let that bother me. But this question rattled me and almost made me feel guilty about being so lethargic and in so much pain. This guy has a MS patient in his family somewhere. Maybe he was just trying to make conversation. It's always a little awkward in a room with people you don't know that well. I'm kind of uncomfortable in a crowd.
So are people expecting too much from me or am I not expecting enough? And honestly, in the last 20 months I've become somewhat secluded and am "enjoying" my quiet life.
Thanks for letting me rattle on. Guess I needed this today.
I guess he was thinking of other widows he knows who started a life of adventures. And he probably didn't think about the MS and how it impacts lives. It didn't make me mad, just kind of surprised me that a grown man would be a little bit insensitive.
I wake up every day just wondering which appointment I would have to cancel that day or if I would be able to get dressed and get off the couch. My own son thinks I should be more active and I agree. But... well, you know how that can be. Best intentions and all that. One minute you're feeling fairly good and 5 minutes later you are so exhausted you can't imagine doing anything that day.
I know a lot of people are not tuned in to MS and I don't let that bother me. But this question rattled me and almost made me feel guilty about being so lethargic and in so much pain. This guy has a MS patient in his family somewhere. Maybe he was just trying to make conversation. It's always a little awkward in a room with people you don't know that well. I'm kind of uncomfortable in a crowd.
So are people expecting too much from me or am I not expecting enough? And honestly, in the last 20 months I've become somewhat secluded and am "enjoying" my quiet life.
Thanks for letting me rattle on. Guess I needed this today.
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