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    PPMSer hanging in there

    I haven't been on this site for years. I have been living with PPMS for about 15 years; only baclofen and Nortriptylene for nerve pain prescribed. But I started high dose biotin on my own for five years, the "fasting-mimicking" diet( 12 -15 hrs w/o eating), laser treatments for a year and a half and still on a gluten-free diet. I am on a cane.

    #2
    Originally posted by Gertrude View Post
    I haven't been on this site for years. I have been living with PPMS for about 15 years; only baclofen and Nortriptylene for nerve pain prescribed. But I started high dose biotin on my own for five years, the "fasting-mimicking" diet( 12 -15 hrs w/o eating), laser treatments for a year and a half and still on a gluten-free diet. I am on a cane.
    Hi Gertrude

    Glad you stopped by to check-in!

    Looks like you are taking good care of yourself.

    I do a 24 hour fast, once a week. Hesitant to do more than that, as I am underweight.

    The diet I follow is a combo of the Mediterranean and the Mind Diet, which I feel well on.

    What are your laser treatments, if you don't mind my asking?

    Thanks!

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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      #3
      Hi Gertrude,

      Glad you came back. Also curious about the laser treatment.

      Hope to see more of you.
      Kathy
      DX 01/06, currently on Tysabri

      Comment


        #4
        Originally posted by Gertrude View Post
        I haven't been on this site for years. I have been living with PPMS for about 15 years; only baclofen and Nortriptylene for nerve pain prescribed. But I started high dose biotin on my own for five years, the "fasting-mimicking" diet( 12 -15 hrs w/o eating), laser treatments for a year and a half and still on a gluten-free diet. I am on a cane.
        It's so good to see you posting again!

        We have some things in common:
        - i'm a long term MS-er too. A little different than you though -- MS started 18 years ago and I think I've transitioned, in recent years, from RRMS to SPMS.
        - I'm not on high dose biotin. I've read about it and considered it; I'd be interested to hear how you think it's affected your MS. I'm on a high dose vitamin D protocol (it includes adequate amounts of the right types of vitamin K and calcium and is monitored by my functional medicine doctor).
        - I also do some intermittent fasting -- not every day, but frequently -- more than half the time, probably.
        - I'm on a GF diet too. Also DF, mostly sugar free, etc. Additional Wahls Protocol dietary strategies.

        Tell me more about laser. What do you use that for?

        I also see a kinesiologist, acupuncturist, health coach regularly.

        I'm on Copaxone, but I'm in conversation with my MS Specialist about going off. She plans to do an MRI in May and we'll talk about it more after we see the results.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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