Hello,
I've had an account since October and I was here reading before that but I finally decided to post something.
My first known/clear MS symptom was in November 2004 (six months after my youngest of two was born) and was officially diagnosed in January 2006 after a scary 2005 full of symptoms that were coming fast & furious. I started with only 1 large lesion on my spine and by the end of 2005, I also had lesions on my brain. I knew I had MS before they gave me the official news because 1. my original neurologist thought that's what I had when our only clue was a single spinal lesion and some numbness (I thought he was a quake) and 2. every time I got a crazy new symptom that first year, I looked it up and it was a MS symptom.
In November 2005, I started following Dr. Swank's diet and in February 2006 I started LDN and things calmed down tremendously. I moved to a different state in 2009 and didn't have a neurologist that specialized in MS until recently but according to him I was as stable as I would have been on the Interferon shots. In December 2018, I had a brain MRI for some hearing loss, they compared it to a previous MRI I had and saw I had active lesions.
My PCP wanted me to follow-up with my neurologist who I found out had retired. I also found out that a MS clinic had just been opened at the University Hospital near me so I went there and saw a specialist for the first time since 2008. Based on how long I've had MS, he recommended I do Lemtrada and because of his extensive experience with it even while it was going through trials; I decided to give it a go. I was diagnosed the first time when I was 29 and had two toddlers; I told myself then that I had to be around for my grandkids. I've had this for 15-years now and Lemtrada seems to be my best medical bet to make that happen. I did my first 5-day infusion in October.
I did a lot of reading on message boards and searched out non-drug company sponsored blogs while I was deciding. I started my own blog to "pay it forward"; the url is in my profile if anyone is interested.
My kids are now in high school and my 'hopes and dreams' are to be around and healthy for as long as possible. I am thinking 125; It would be kind of cool to see the year 2100. I've got a husband who I couldn't have made it this far without; the two kids I mentioned; a lab mix who is the best dog ever and a black cat who is a grouch (I am a cat person but she is). I have a degree in Environmental Science and worked in the Environmental Consulting field for 17 years.
I just got my 200-hr yoga teaching certificate that I really got to teach myself and family but who knows where that might lead. Right now, I am just concentrating on getting through this Lemtrada journey and surviving teenagers then we will see.
Thanks for being here and allowing me to learn from you all.
Happy New Year, Amy
I've had an account since October and I was here reading before that but I finally decided to post something.
My first known/clear MS symptom was in November 2004 (six months after my youngest of two was born) and was officially diagnosed in January 2006 after a scary 2005 full of symptoms that were coming fast & furious. I started with only 1 large lesion on my spine and by the end of 2005, I also had lesions on my brain. I knew I had MS before they gave me the official news because 1. my original neurologist thought that's what I had when our only clue was a single spinal lesion and some numbness (I thought he was a quake) and 2. every time I got a crazy new symptom that first year, I looked it up and it was a MS symptom.
In November 2005, I started following Dr. Swank's diet and in February 2006 I started LDN and things calmed down tremendously. I moved to a different state in 2009 and didn't have a neurologist that specialized in MS until recently but according to him I was as stable as I would have been on the Interferon shots. In December 2018, I had a brain MRI for some hearing loss, they compared it to a previous MRI I had and saw I had active lesions.
My PCP wanted me to follow-up with my neurologist who I found out had retired. I also found out that a MS clinic had just been opened at the University Hospital near me so I went there and saw a specialist for the first time since 2008. Based on how long I've had MS, he recommended I do Lemtrada and because of his extensive experience with it even while it was going through trials; I decided to give it a go. I was diagnosed the first time when I was 29 and had two toddlers; I told myself then that I had to be around for my grandkids. I've had this for 15-years now and Lemtrada seems to be my best medical bet to make that happen. I did my first 5-day infusion in October.
I did a lot of reading on message boards and searched out non-drug company sponsored blogs while I was deciding. I started my own blog to "pay it forward"; the url is in my profile if anyone is interested.
My kids are now in high school and my 'hopes and dreams' are to be around and healthy for as long as possible. I am thinking 125; It would be kind of cool to see the year 2100. I've got a husband who I couldn't have made it this far without; the two kids I mentioned; a lab mix who is the best dog ever and a black cat who is a grouch (I am a cat person but she is). I have a degree in Environmental Science and worked in the Environmental Consulting field for 17 years.
I just got my 200-hr yoga teaching certificate that I really got to teach myself and family but who knows where that might lead. Right now, I am just concentrating on getting through this Lemtrada journey and surviving teenagers then we will see.
Thanks for being here and allowing me to learn from you all.
Happy New Year, Amy
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