Well I shall start with the filthy business, diagnosed with RRMS in 2000, recently my doctors and I are thinking moving into SPMS. So yay.
I have never really used any support before, just was honestly in denial for 15 years, now im acceptingish, and with that Im losing my motivation. (or energy, MS Fatigue sucks)
I have 2 beautiful daughters a beautiful wife and a stepson anyone would be proud to call theirs. I am a mental health counselor by trade, and I am learning to work on and build stringed instruments. Anything to work on my coordination I am losing. I do not know what I am looking for in this place, however I hope I find it. I have never really felt comfortable talking about MY ms to anyone really. I can give an overview of my symptoms, my medications, treatment plans, and changes in my physical well being, but I have yet to feel like I can tell someone how I feel without thinking in the back of my mind that they doubt I really have it, or that Im making it sound worse so I get sympathy, or the most annoying of all, "oh yeah i know how that feels", or "Im tired too, I just make myself get up and do it!".
Maybe my issue is I have never really talked to anyone who may have a clue of what it is like. One of my bigger fears and causes not to discuss any of this is how I will feel discussing things that are difficult for me to deal with to people who are so much more involved than I am.
Now that I have read what i wrote my anxiety wants to delete it all and just say Hi! So that seems like too much work, so I shall stop here, and see if anyone can decipher this mess.
I have never really used any support before, just was honestly in denial for 15 years, now im acceptingish, and with that Im losing my motivation. (or energy, MS Fatigue sucks)
I have 2 beautiful daughters a beautiful wife and a stepson anyone would be proud to call theirs. I am a mental health counselor by trade, and I am learning to work on and build stringed instruments. Anything to work on my coordination I am losing. I do not know what I am looking for in this place, however I hope I find it. I have never really felt comfortable talking about MY ms to anyone really. I can give an overview of my symptoms, my medications, treatment plans, and changes in my physical well being, but I have yet to feel like I can tell someone how I feel without thinking in the back of my mind that they doubt I really have it, or that Im making it sound worse so I get sympathy, or the most annoying of all, "oh yeah i know how that feels", or "Im tired too, I just make myself get up and do it!".
Maybe my issue is I have never really talked to anyone who may have a clue of what it is like. One of my bigger fears and causes not to discuss any of this is how I will feel discussing things that are difficult for me to deal with to people who are so much more involved than I am.
Now that I have read what i wrote my anxiety wants to delete it all and just say Hi! So that seems like too much work, so I shall stop here, and see if anyone can decipher this mess.
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