I had my first MS episode 5+ years ago. Several months later I developed intense tingling and pain in both hands. They did 1,000mg of corticosteroids for 5 days.
It took me 3 years to get a definitive diagnoses from a doctor at a MS clinic, MS. It's been a continual downhill since then. Extreme fatigue. Skin changes, rashes, and at once matching the lupus across the face but it left. Extreme dryness of skin all over, rashes at times, redness, and the only thing multiple dermatologist said was use more morturizer.
Resting heart rate without medication 150. Shortness of breath at random times and at times pretty severe.
I've got to multiple and multiple doctors about such and they say "common with MS". My MS doctor said "something got screwed up with your immune system from the corticosteroids". Also she said you have a very very minor case of MS. Cardiologist said nothing wrong with heart after many many test.
I've not been on any MS medication. I have not developed any new lesions in 5+ years.
Anyone else have these symptoms. I can't work. I can't walk more than a few minutes for running out of breath. Extreme stiffness. I do some light exercise that I can. But for me to get on my knees on the floor and back can take a few hours to recover from that.
I'm not saying I don't have MS. I'm just stuck in limbo of can't do anything for years now.
It took me 3 years to get a definitive diagnoses from a doctor at a MS clinic, MS. It's been a continual downhill since then. Extreme fatigue. Skin changes, rashes, and at once matching the lupus across the face but it left. Extreme dryness of skin all over, rashes at times, redness, and the only thing multiple dermatologist said was use more morturizer.
Resting heart rate without medication 150. Shortness of breath at random times and at times pretty severe.
I've got to multiple and multiple doctors about such and they say "common with MS". My MS doctor said "something got screwed up with your immune system from the corticosteroids". Also she said you have a very very minor case of MS. Cardiologist said nothing wrong with heart after many many test.
I've not been on any MS medication. I have not developed any new lesions in 5+ years.
Anyone else have these symptoms. I can't work. I can't walk more than a few minutes for running out of breath. Extreme stiffness. I do some light exercise that I can. But for me to get on my knees on the floor and back can take a few hours to recover from that.
I'm not saying I don't have MS. I'm just stuck in limbo of can't do anything for years now.
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