Hi KoKo and Kathy,
I have been waiting all day for some sort of update but haven't heard a thing. I'm still feeling pretty yucky from the Rituximab today so I don't even think I can manage high dose steroids at the moment. I am one of those unlucky people and steroids cause bad side effects including tachycardia, severe hypertension and high blood sugars. I know I need them but I don't want them. The holidays are going to make things even more difficult as the infusion center is already booked.
In retrospect, I have had three relapses since starting the Rituximab. My neurologist warned me that relapses were not uncommon in the first months of starting treatment. My first relapse happened 2 months after starting. The second one was at the 11th month mark and the last at 14 months. I know the Rituximab is on board for the next 6 months, give or take. I've asked my neuro the big questions so I will wait and see what he recommends. I worry that I may becoming more progressive since I spent many years not on a DMT.
I'll keep you all posted once I hear more. Thanks, again!
I have been waiting all day for some sort of update but haven't heard a thing. I'm still feeling pretty yucky from the Rituximab today so I don't even think I can manage high dose steroids at the moment. I am one of those unlucky people and steroids cause bad side effects including tachycardia, severe hypertension and high blood sugars. I know I need them but I don't want them. The holidays are going to make things even more difficult as the infusion center is already booked.
In retrospect, I have had three relapses since starting the Rituximab. My neurologist warned me that relapses were not uncommon in the first months of starting treatment. My first relapse happened 2 months after starting. The second one was at the 11th month mark and the last at 14 months. I know the Rituximab is on board for the next 6 months, give or take. I've asked my neuro the big questions so I will wait and see what he recommends. I worry that I may becoming more progressive since I spent many years not on a DMT.
I'll keep you all posted once I hear more. Thanks, again!
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