had 1st Ocrevus infusion yesterday

[kmallory1]

I think reporting of DMT side effects probably varies considerably by doctor. Two weeks ago I was sent home without my Ocrevus infusion by the nurse practitioner because of the possibility that a recurring UTI might still be in the works.

The next day I got a call from Genentech about missing my infusion. Its now in their database as an adverse event, with follow up calls scheduled. It was obviously reported by the MS center immediately.

[Myoak]

I think reporting of DMT side effects probably varies considerably by doctor. Two weeks ago I was sent home without my Ocrevus infusion by the nurse practitioner because of the possibility that a recurring UTI might still be in the works.

The next day I got a call from Genentech about missing my infusion. Its now in their database as an adverse event, with follow up calls scheduled. It was obviously reported by the MS center immediately.

I'm sorry your infusion did not come off as planned. Hopefully, things will get back on track quickly.

I agree wholeheartedly that reporting side effects varies considerably from doctor to doctor.

Also, I want to correct my previous post and insert a critical omission which I will highlight in the following paragraph...

"The one caution I would urge is from my household and goes as follows... for those who respond well on Tysabri the effect can be so good that it lures you into thinking your MS is not so bad, after all. Therefore thinking, if you switch DMTs, you will continue being fine relative to MS w/o having exposure to PML on Tysabri. However, you may NOT respond to the switched DMT as well, PLUS, what are the real risks of the new DMT?"

One of the banes of this site is the inability to make simple corrections like the one above. You have to do a new post or go through an administrator which has occasionally taken a couple of days in the past. I appreciate the administrators we now have and appreciate the job they all do.