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    Optic Neuritis Help

    Hello out there. Was wondering if anyone has had optic neuritis for more than a couple months. I've had it since August and had steroids to no avail. Looking for answers or other options to help restore vision. Neuro has brought up IVIG but am hesitant. Please help and thanks in advance



    Mike
    Mike

    #2
    Sorry that it hasn't been quickly resolved for you, Mike.

    I've had optic neuritis twice. The first time was pre-dx and no steroids given. The doctors at the time just scratched their heads and thought I was just having a nervous breakdown - hah! It took about 3 months or so to clear up.

    The 2nd time it happened led to my diagnose. Had a 5 day Solumedrol steroid intravenous injection routine and it still took about 3 months or so to get back to a near normal base line. Steroids are not always effective for immediate relief and stopping the flare for some patients, but may shorten the relapse.

    I've never had IVIG, but hopefully someone here can share their experience.

    Hang in there and take care. I know it's no fun!
    1st sx '89 Dx '99 w/RRMS - SP since 2010
    Administrator Message Boards/Moderator

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      #3
      I developed optic neuritis in my left eye last September. I was treated with high dose IV steroids and Clemastine. UCSF has a ongoing study called ReCover which I didn't qualify for but was placed on the medication anyhow. My optic neuritis recovery has been slow and "atypical". My corrected vision is now about 20/50-20/70 depending on the day and my visual field is significantly affected. My doctors are still seeing an afferent pupillary defect one year later.

      On a good note, my last OCT shows my optic nerve didn't take a permanent hit and that may be due to the Clemastine. I have attached a link about it. Good luck. Have you been tested for Neuromyeltis Optica?

      https://www.ucsf.edu/news/2017/10/40...iple-sclerosis

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        #4
        Originally posted by mike423 View Post
        Neuro has brought up IVIG but am hesitant. Please help and thanks in advance
        Mike,
        I'm sorry that your optic neuritis hasn't abated.

        I made a post about IVIg several years ago that might answer some of your questions. If you have any other questions please feel free to ask.

        Personally, I would not hesitate to try IVIg to try and restore eyesight, but only you can decide what is best for you. I wish you well..

        Old IVIg post
        https://www.msworld.org/forum/showth...7-IVIg-Summary

        There is a retrospective study about using IVIg, when steroids have failed.
        https://n.neurology.org/content/90/15_Supplement/P2.148

        Here is an earlier study:
        https://www.ncbi.nlm.nih.gov/m/pubmed/18727675/

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