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    #16
    Originally posted by 502E79 View Post
    " 'I will never be happy again and I have every right to be angry and every right to hate every single person who doesn’t have this curse. I do not deserve joy or happiness. I am not deserving of anything. There is no way I can deserve anything in life since I’ll never be anything that I wanted to be…' " *

    The ups and downs of MS can open doors to gratitude (Marco, myself and many here) but also into the abyss. I can see how staring into the negative may result in feeling cursed. You need to shrug it off, to come to your senses. Most do.

    *The first paragraph, from an old post, is an example of where you not want to go.
    I wish you would have made your valid point without the disparaging comment about one of our own who was obviously struggling.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

    Comment


      #17
      I think I need to clarify my original posting. I did not mean to ask if you feel you have been cursed by getting MS, sorry I should have made that more clear. What I meant was do you ever feel that life has a way of throwing obstacle after obstacle after obstacle across your path, not only obstacles but even just things going constantly wrong within the space of a short period of time.

      Beginning on September, Friday the 13th (but of course it would be wouldn’t it LOL) I have had so many things go consistently wrong in my life, in my house, in general… to the point where it was becoming suspiciously weird.

      I can’t say that I believe in curses but I can’t help but wonder if the universe is trying to tell me something LOL Mind you not a day goes by when I don’t thank God for what I have. I know that whatever I have that is not right could be a whole hell of a lot more wrong than it is. This was in no way about feeling sorry for oneself, that’s not what I meant.

      I was just wondering if anybody else ever felt they had been jinxed LOL. Maybe I should’ve used the word jinxed instead of cursed…
      Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. ... Dr. Seuss

      Comment


        #18
        Hi choco.

        Originally posted by choco View Post
        What I meant was do you ever feel that life has a way of throwing obstacle after obstacle after obstacle across your path, not only obstacles but even just things going constantly wrong within the space of a short period of time.

        Beginning on September, Friday the 13th (but of course it would be wouldn’t it LOL) I have had so many things go consistently wrong in my life, in my house, in general… to the point where it was becoming suspiciously weird.
        Many years ago I broke (shattered) my ankle on a Friday the 13th

        Usually when there are obstacle after obstacle thrown our way it can mean we need to look or go in a different direction in life. Sometimes when things repeat we haven't "learned" what these obstacles or weird things are trying to tell us.

        Okay, all of that might make you what the heck! As I don't know exactly what is going on in your life (and it's actually none of my business) I may be way off base.

        Let me share a little of my story of weird, it may or may not help you.

        I have lived in the same house for almost 24 years, we are the original owners and this house was built on land that had once been a working farm. My daughter, from a young age would see an Indian on horse back in full headdress (If that's the proper word for it?). She also saw a little girl in a yellow faded sun suit skipping down the hallway. I, in my infinite (not) wisdom thought it was just a child's imagination.

        Many years later I started to experience some very weird and what the heck moments. these included different smells, a dog that ran to the front of the house, looked up to the ceiling and with hackles up, growled. Then did the same thing in the same area in the garage. Just to be clear I was not the only one getting certain smells in certain areas of the house. I was getting a feeling of negative energy, evil spirits, or "something" (whatever one may want to call this) that I needed to remove.

        I ended up being "lead" into an area of research I knew nothing about nor had ever heard of. I started getting involved with "cleansing" of my home. For me, this consisted of smudging with white sage. It took me many times and not really knowing what I was doing but I ended up "feeling" a difference in my home and myself. I still do smudging for me and my home and find it very calming. In this process I also became interested in crystals and have many throughout my home.

        Those obstacles and weird things stopped happening. I became more open to many different things. I'm not suggesting any of what I have said pertains to your situation or that you are even believing what I have written

        During this time I had been in and out of Psychotherapy and I was fortunate enough to be working with someone that understood what I was experiencing. My Therapist was so much help in many different ways because I truly thought I was crazy due to the many things I was experiencing.
        Diagnosed 1984
        “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

        Comment


          #19
          Originally posted by SNOOPY View Post
          Usually when there are obstacle after obstacle thrown our way it can mean we need to look or go in a different direction in life. Sometimes when things repeat we haven't "learned" what these obstacles or weird things are trying to tell us.
          I have found this to be true in my life experiences.

          Take Care
          PPMS for 26 years (dx 1998)
          ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

          Comment


            #20
            1990 was one of those years!

            I quit work to go back to college in Jan.
            Totalled my car in a snow storm two days before classes started.
            Every major appliance in my house broke. Washer, dryer and dishwasher.
            Finals week my feet to my waist went numb.
            Diagnosed with MS 2 weeks later.
            Turned 30 two weeks after that!

            I really did feel kind cursed!

            The good news is I managed to finish and pass my finals during that first ms attack.
            And I went on to get my bachelor's and then my master's degree in spite of MS. Kind of like the rainbow after the storm!

            Comment


              #21
              Originally posted by Leenyi View Post

              I quit work tI managed to finish and pass my finals during that first ms attack.
              And I went on to get my bachelor's and then my master's degree in spite of MS. Kind of like the rainbow after the storm!
              You did have a stormy year. I'm glad you had the perseverance to find the rainbow!
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment


                #22
                Originally posted by Leenyi View Post
                1990 was one of those years!

                I quit work to go back to college in Jan.
                Totalled my car in a snow storm two days before classes started.
                Every major appliance in my house broke. Washer, dryer and dishwasher.
                Finals week my feet to my waist went numb.
                Diagnosed with MS 2 weeks later.
                Turned 30 two weeks after that!

                I really did feel kind cursed!

                The good news is I managed to finish and pass my finals during that first ms attack.
                And I went on to get my bachelor's and then my master's degree in spite of MS. Kind of like the rainbow after the storm!
                That is a lot but I love your perseverance and the wonderful outcome! This is probably some form of denial but when I get a cluster of bad things happening I think maybe I'm getting it all done at once and will have a few months or years of smooth sailing after.
                He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
                Anonymous

                Comment


                  #23
                  Cursed, as in someone put the whammy on me, no. But there are times I feel like the cosmos is ganging up on me. Then I remember that I’m a puny speck and that I’m not important enough to get noticed by the cosmos, much less acted upon. So I get a good laugh at myself.

                  It’s not about MS, though. It’s always about my mood at the moment. It’s a
                  pity party that gets old really fast. 😆

                  Comment


                    #24
                    Originally posted by MMMMS View Post
                    Cursed, as in someone put the whammy on me, no. But there are times I feel like the cosmos is ganging up on me. Then I remember that I’m a puny speck and that I’m not important enough to get noticed by the cosmos, much less acted upon. So I get a good laugh at myself.
                    Well, there's a lighthearted perspective! Thanks, MMMMS

                    Take Care
                    PPMS for 26 years (dx 1998)
                    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                    Comment


                      #25
                      Originally posted by SNOOPY View Post
                      Hi choco.



                      Many years ago I broke (shattered) my ankle on a Friday the 13th

                      Usually when there are obstacle after obstacle thrown our way it can mean we need to look or go in a different direction in life. Sometimes when things repeat we haven't "learned" what these obstacles or weird things are trying to tell us.

                      Okay, all of that might make you what the heck! As I don't know exactly what is going on in your life (and it's actually none of my business) I may be way off base.

                      Let me share a little of my story of weird, it may or may not help you.

                      I have lived in the same house for almost 24 years, we are the original owners and this house was built on land that had once been a working farm. My daughter, from a young age would see an Indian on horse back in full headdress (If that's the proper word for it?). She also saw a little girl in a yellow faded sun suit skipping down the hallway. I, in my infinite (not) wisdom thought it was just a child's imagination.

                      Many years later I started to experience some very weird and what the heck moments. these included different smells, a dog that ran to the front of the house, looked up to the ceiling and with hackles up, growled. Then did the same thing in the same area in the garage. Just to be clear I was not the only one getting certain smells in certain areas of the house. I was getting a feeling of negative energy, evil spirits, or "something" (whatever one may want to call this) that I needed to remove.

                      I ended up being "lead" into an area of research I knew nothing about nor had ever heard of. I started getting involved with "cleansing" of my home. For me, this consisted of smudging with white sage. It took me many times and not really knowing what I was doing but I ended up "feeling" a difference in my home and myself. I still do smudging for me and my home and find it very calming. In this process I also became interested in crystals and have many throughout my home.

                      Those obstacles and weird things stopped happening. I became more open to many different things. I'm not suggesting any of what I have said pertains to your situation or that you are even believing what I have written

                      During this time I had been in and out of Psychotherapy and I was fortunate enough to be working with someone that understood what I was experiencing. My Therapist was so much help in many different ways because I truly thought I was crazy due to the many things I was experiencing.
                      Snoopy, you and I are preaching from the same pulpit LOL , first of all, ouch! On your ankle I hope it is all better.

                      As regards your “other worldly” experiences, been there, done it, got a couple of those T-shirts LOL I just had four mediums come to my home and smudge and “escort” a couple of unwanted entities out of my home. It is too long to go into here and I don’t really want to be taking up forum time with this. If you’re able to PM me, and want to discuss this further, then definitely do.
                      Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. ... Dr. Seuss

                      Comment


                        #26
                        Wow, thanks to everyone for your input and comments. It is interesting to get peoples views and experiences on this.
                        Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. ... Dr. Seuss

                        Comment


                          #27
                          I've never had that "why me?" question hanging over my head. I've never questioned why I was the one to get MS. I do have a lot of questions about the symptoms and I post all of them here. It is what it is.
                          Marti




                          The only cure for insomnia is to get more sleep.

                          Comment


                            #28
                            Originally posted by marti View Post
                            I've never had that "why me?" question hanging over my head. I've never questioned why I was the one to get MS. I do have a lot of questions about the symptoms and I post all of them here. It is what it is.
                            Me too. I don't ask "why me".

                            Why not me? Stuff happens. MS is just my stuff. Yup; it is what it is.
                            ~ Faith
                            MSWorld Volunteer -- Moderator since JUN2012
                            (now a Mimibug)

                            Symptoms began in JAN02
                            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                            .

                            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                            Comment


                              #29
                              Originally posted by Mamabug View Post
                              Why not me? Stuff happens. MS is just my stuff. Yup; it is what it is.
                              True story!
                              He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
                              Anonymous

                              Comment


                                #30
                                Originally posted by choco View Post
                                Wow, thanks to everyone for your input and comments. It is interesting to get peoples views and experiences on this.
                                At times, it's best to look back at your own life to realize that you're going to get through today's struggles.

                                Originally posted by Marco View Post
                                The past several weeks have been tiring and hectic. I post a lot about new treatments and try to remain positive, but I do struggle like the rest of you.
                                ....

                                Despite everything, I am feeling blessed. I had a nice dinner with my wife and she’s here next to me. I could get upset about all the troubles, but the reality is we’re making it through them all. I can still say God is good and put all of these issues in the “temporary” category.
                                ...

                                Most importantly remember that life is precious and fleeting so focus on the important stuff. I am very grateful for MSWorld and the wonderful members that make this difficult journey that much easier. I wish you all well!
                                This came from the following thread:
                                https://www.msworld.org/forum/showth...ong-long-month

                                I could post several other harsh times, but many of them are similar because perspective really makes the biggest difference. It's often easier to look at the hardships we are currently experiencing while overlooking the blessings of the moment. What we decide to focus on usually dictates our current attitude.

                                Life will always have it's ups and downs, but without the downs how would you ever know of the ups?

                                I wish you well...

                                Comment

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