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    Genetic Study

    https://www.nationalmssociety.org/Ab...m-Confirms-233

    #2
    Thank you for the article, MMMMS.

    Very interesting!

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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      #3
      Participate in Genetic Studies

      People living with MS may hold the key to curing this disease. They, and often their family members, can make a difference in studies of the genes that put people at risk for MS by donating their DNA from blood samples. Understanding the role of genes in MS could revolutionize the way this disease is diagnosed and treated, and ultimately lead to ending MS forever through its prevention.

      DNA/Bio-Repository Bank for MS genetic studies

      The National MS Society has been supporting a DNA/Bio-Repository Bank at the University of California at San Francisco (UCSF) for many years. This bank is a shared resource that is feeding many of the genetic breakthroughs happening today. The UCSF Multiple Sclerosis Genetics Group is a founding member of the International MS Genetics Consortium seeking to understand the genetic basis of MS. A large number of participants are needed to accelerate discovery. Please note: this is a nationwide study; and people everywhere can participate without living near or traveling to San Francisco, CA.


      https://www.nationalmssociety.org/Re...enetic-Studies
      PPMS for 26 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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        #4
        You beat me to the punch, KoKo

        For those interested, here are the particulars of who can participate in these genetic studies:


        Types of studies
        Family MS study


        The UCSF MS Genetics Group is looking for participation of two types of families: single-case and multi-case families.

        Single-case families are those where only one member is diagnosed with MS. Participation will require a one-time donation of blood from the individual with MS and, if available, a control. The control cannot be a family member but can be a spouse or friend. Preferably the control will be of the same ethnicity and approximately the same age as the individual with MS.

        Multi-case families are those where multiple living, family members have been diagnosed with MS. For these families, the group collects blood samples from all affected family members, unaffected siblings, and both parents of individuals diagnosed with MS. If not all of the individuals requested are able to participate, enrollment is still possible and will be discussed by phone.

        African-American MS study

        Different populations are being studied to learn why some ethnic groups develop MS at higher rates than others. The MS Genetics Group is asking for the donation of a blood sample from African-American individuals with MS and controls without MS. It is not required, but the participation of certain family members is preferred as well. Read more here.

        Primary Progressive MS

        Primary Progressive Multiple Sclerosis (PPMS) is characterized by steadily worsening neurologic function from the onset of the disease. There are still many gaps in the knowledge we have about what differentiates Relapsing-Remitting MS from PPMS and the underlying mechanisms. The MS Genetics Group at the University of California San Francisco is recruiting Primary Progressive MS patients and, if possible, an unrelated control without MS for a research study involving a one-time blood sample donation with the goals of identifying genetic factors driving the course of the disease. With your help, we hope to identify the major genetic factors that play a role in disease presentation and progression. Please note: you do not have to be located in California to participate. Everything for the study can be done remotely and is free of charge to participants.

        Please note: these studies cannot enroll international participants at this time.
        1st sx '89 Dx '99 w/RRMS - SP since 2010
        Administrator Message Boards/Moderator

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          #5
          My 3 cousins and I have MS and are a part of this growing study.

          Wow! I remember when there were only a handful of suspicious genes and now there is over 200 and climbing? The part about the X genes explains whey 3 out of 4 of us MS (cousins on my mother's side) are chicks! I would love to know if any of m relatives have or had the same genes as me and did not get MS. If so. What did they do that I did not?

          This is an important study no doubt. Thanks for the share!
          Tawanda
          ___________________________________________
          Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

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