Chronic micro vascular ischemia disease at 39?

[vortexmama79]

So I’ve been looking into my symptoms for over 2 years. Seen two neurologists, had tons of scans and tests. All they can give me is chronic microvascular ischemic disease?? That’s common in much older people. I feel like they don’t want to investigate any further so they are going with this. Am I crazy to feel like this or I just need to accept my brain is way older than it should be an I should expect to lose my mind ? Anyone have any experience with this or given this diagnosis??

[pennstater]

Welcome. Sorry you are experiencing health issues. What type of symptoms do you have? What did your MRIs show?

Is there a reason you feel the diagnosis doesn't fit, other than age? Do you have risk factors(high BP, cholesterol,etc...) for it and/or any stroke history? How did the neuros suggest you treat it? Any follow-up tests?

Were the neuros general neurologists? If so, you may want to consider an MS specialist.

[vortexmama79]

Welcome. Sorry you are experiencing health issues. What type of symptoms do you have? What did your MRIs show?

Is there a reason you feel the diagnosis doesn't fit, other than age? Do you have risk factors(high BP, cholesterol,etc...) for it and/or any stroke history? How did the neuros suggest you treat it? Any follow-up tests?

Were the neuros general neurologists? If so, you may want to consider an MS specialist.

i have had tingling in hands a feet for years, bouts of losing my vision, blurry vision. I have issues with the left side of my body. Had MRIs that showed white spots on my brain but not spine. I got the it doesn’t totally fit MS but it kinda does. Did that evoke test and she couldn’t figure why I’m so much weaker on my left.
I have NO risk factors for theChronic microvascular disease. No strokes. Doc said basically all I could do was take good care of myself. That’s it’s. Super frustrating. I saw two different neurologists, my options aren’t huge related to insurance

[KoKo]

I got the it doesn’t totally fit MS but it kinda does. Did that evoke test and she couldn’t figure why I’m so much weaker on my left.

Hi vortexmama

Sorry to learn that you are dealing with uncertainty, doubt, and frustration regarding your diagnosis.

I'm wondering if you had a lumbar puncture for spinal fluid analysis, and your eyes examined by a neuro ophthalmologist?

These tests can also provide important info.

Take Care

[vortexmama79]

Hi vortexmama

Sorry to learn that you are dealing with uncertainty, doubt, and frustration regarding your diagnosis.

I'm wondering if you had a lumbar puncture for spinal fluid analysis, and your eyes examined by a neuro ophthalmologist?

These tests can also provide important info.

Take Care

They didn’t really push for the lumbar puncture and neither did I. I never thought about a neuro ophthalmologist. I don’t want to have MS but I feel like they just gave me that diagnosis to appease me cause I didn’t “fit the mold” exactly to anything

[KoKo]

I don’t want to have MS but I feel like they just gave me that diagnosis to appease me cause I didn’t “fit the mold” exactly to anything

I totally understand what you're saying, vortexmama.

You want to feel confident in your diagnosis, and also feel that you're getting proper treatment.

You probably will have the nagging doubts until you see a neuro that specializes in MS, and he can explain in detail why you have CMVI, and don't have MS. I know that I would need to know for sure, or the uncertainty would really bug me.

Take Care

[vortexmama79]

I totally understand what you're saying, vortexmama.

You want to feel confident in your diagnosis, and also feel that you're getting proper treatment.

You probably will have the nagging doubts until you see a neuro that specializes in MS, and he can explain in detail why you have CMVI, and don't have MS. I know that I would need to know for sure, or the uncertainty would really bug me.

Take Care

Thank you! I so appreciate someone understanding how I feel! You are right I need to find someone to say for sure why it’s CMVI

[KoKo]

Thank you! I so appreciate someone understanding how I feel! You are right I need to find someone to say for sure why it’s CMVI

vortexmama

Talk to your primary doctor about your concerns, in the same way that you have shared here with us.

In a perfect world, (and with perfect health insurance coverage), doc would understand what bothers you about the dx, and would do whatever he needs to do to help alleviate it.

Take Care