Hey! I just saw my Neuro yesterday and found out I’m Secondary progressive. I had a feeling that that’s what she was going to say...but it still devastated me.
I felt like my hope to one day get some mobility back was there because of the name relapsing-remitting but it never happened for me.
My leg started shocking me randomly in 2012 then eventually became all the time and the weakness followed suite. I just started using a walker a couple of months ago.
But yet my MRI’s were squeaky clean. It was confusing to me. Now I know that it was because my progressive disease doesn’t show on mri’s.
Im letting myself feel all my feelings today and mourn the loss of mobility permanently but know that I’ve got to bounce back, and push on.
My question is to other SPMSer’s and how they’ve dealt with the transition/new diagnosis?
I felt like my hope to one day get some mobility back was there because of the name relapsing-remitting but it never happened for me.
My leg started shocking me randomly in 2012 then eventually became all the time and the weakness followed suite. I just started using a walker a couple of months ago.
But yet my MRI’s were squeaky clean. It was confusing to me. Now I know that it was because my progressive disease doesn’t show on mri’s.
Im letting myself feel all my feelings today and mourn the loss of mobility permanently but know that I’ve got to bounce back, and push on.
My question is to other SPMSer’s and how they’ve dealt with the transition/new diagnosis?
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