Hello all. I have been lurking for a bit and this is my first post. Im a 44 yo man, and about 6 months ago, I started having mild tremors in my hands, some memory slips, and a recurrence of facial numbness that I had about 3 years ago and brushed off. This was followed by some significant psychological issues that I am still dealing with and in treatment for.
Ive seen a few neurologists and MS specialists at academic med centers. Im in NYC so there are a few. One MRI, non contrast, showed a few “tiny foci” that didnt alarm anyone but me. 2nd MRI, with Contrast, showed “normal mri of the brain”. CSF is oligoclonal negative, but my protein levels were slightly elevated.
I have been driving my family crazy with this and am at the point where I am looking for a third or fourth opinion. My biggest concern is my memory, which is forgetting last names and faces way more than it should be. Its a daily occurrence now. Tremors continue and are now in my lips and tongue, ear popping. I am very scared and alone and just reaching out to find some people with cogent advice, who also dont think I am crazy.
Ive had follow ups with a memory specialist, a urologist, a GP, an MS doc, psychiatry, etc, and just dont feel like anyone is piecing together the pieces.
Ive seen a few neurologists and MS specialists at academic med centers. Im in NYC so there are a few. One MRI, non contrast, showed a few “tiny foci” that didnt alarm anyone but me. 2nd MRI, with Contrast, showed “normal mri of the brain”. CSF is oligoclonal negative, but my protein levels were slightly elevated.
I have been driving my family crazy with this and am at the point where I am looking for a third or fourth opinion. My biggest concern is my memory, which is forgetting last names and faces way more than it should be. Its a daily occurrence now. Tremors continue and are now in my lips and tongue, ear popping. I am very scared and alone and just reaching out to find some people with cogent advice, who also dont think I am crazy.
Ive had follow ups with a memory specialist, a urologist, a GP, an MS doc, psychiatry, etc, and just dont feel like anyone is piecing together the pieces.
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