Hi everybody.
So, since I last posted:
My job tried to screw me over but I got Permanent disability (thankful)
I have found a THIRD neurologist because the last two just didn't give a crap about me as much as my health care provider. I'm now on Tecfidera and other than the nausea, the stuff seems to be working. (One of my lesions is shrinking!)
I have a standing ability but fatigue is still an issue so I got a wheelchair but when I was active (239LBS) my inactivity put some weight on me (305LBS) so I and my fiancee both received the GASTRIC SLEEVE SURGERY. I am down to 287 LBS.
I want to do things like I did before (with bursts of energy like I have) but Ol' Mr Fatigue comes along and says that's a no go. Makes me feel like useless in household chores and home upkeep. If I could beat the fatigue and get back my balance (I had the agility of a cat, it was something to see) I'd be in a whole new arena.
I LOVE this wheelchair. Not hampered where I struggled to walk before but the worry is "you can't give up on walking. The wheelchair will weaken your legs. Keep walking" but I walk like Frankenstein's Monster (I have the scar on my head from when I was 7, seriously) and I loose all strength if I pick something up AND walk v.s. the chair where I am good to go when others are tired and need to rest.
Don't know what to do on that end.
Feel guilty complaining too. There are those with our affliction that can't even move without assistance. To those that read this, I apologize. I shouldn't gripe. I should just be thankful. I just need some advice and can't find it elsewhere. Thought I could get some here.
Hello again.
So, since I last posted:
My job tried to screw me over but I got Permanent disability (thankful)
I have found a THIRD neurologist because the last two just didn't give a crap about me as much as my health care provider. I'm now on Tecfidera and other than the nausea, the stuff seems to be working. (One of my lesions is shrinking!)
I have a standing ability but fatigue is still an issue so I got a wheelchair but when I was active (239LBS) my inactivity put some weight on me (305LBS) so I and my fiancee both received the GASTRIC SLEEVE SURGERY. I am down to 287 LBS.
I want to do things like I did before (with bursts of energy like I have) but Ol' Mr Fatigue comes along and says that's a no go. Makes me feel like useless in household chores and home upkeep. If I could beat the fatigue and get back my balance (I had the agility of a cat, it was something to see) I'd be in a whole new arena.
I LOVE this wheelchair. Not hampered where I struggled to walk before but the worry is "you can't give up on walking. The wheelchair will weaken your legs. Keep walking" but I walk like Frankenstein's Monster (I have the scar on my head from when I was 7, seriously) and I loose all strength if I pick something up AND walk v.s. the chair where I am good to go when others are tired and need to rest.
Don't know what to do on that end.
Feel guilty complaining too. There are those with our affliction that can't even move without assistance. To those that read this, I apologize. I shouldn't gripe. I should just be thankful. I just need some advice and can't find it elsewhere. Thought I could get some here.
Hello again.
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