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Joints and muscle weakness?

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    Joints and muscle weakness?

    I came off Plegridy approximately 10 weeks ago (had reaction to it) and before that I was on Tecfidera (had a bad allergic reaction to it) and prior to that I was on Betaseron, successfully for 12 years----was just really tired of being a human pincushion.

    My question is this: has anyone else out there developed joint or muscle weakness since being on whatever meds you've chosed to treat your MS? I realize that I am in the aging bracket (I'm 60) and some joint deterioration is to be expected but it seems that after taking Tecfidera and then Plegridy, my joints have been worse than what I'd considered normal.

    I've asked my PCP about this and we had my knees Xrayed----only found very minor arthritis. It began in my knees and now my left ankle is having the same issues. Am I going crazy?
    Wendy
    "There are signs everywhere...."
    "Life is wasted if it's not lived as an adventure."

    #2
    I actually had this years ago, prior to diagnosis and pre-meds.. It lasted about 3 months, then went away. I had a full blood work up, rheumatologist told me to see a neurologist after she cleared me. It went away, so I didn't. I was later told it could have been a flare.

    Now have it on right side, knee, hip, and ankle. The hip and knee sometimes give out. Like you, mild arthritis. It feels better when I exercise. Have also been trying to build up muscles around the joints.

    So not sure if age related, MS, or something else.
    Kathy
    DX 01/06, currently on Tysabri

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      #3
      Thanks for the reply, Kathy! I'm keeping my eye on this issue....my pcp thinks it's all tied to arthritis but my gut tells me it's something a little bit more in the MS-related area. We shall see.
      Wendy
      "There are signs everywhere...."
      "Life is wasted if it's not lived as an adventure."

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        #4
        We shall see?

        So was any further light shed on this for you? I also am going through the same thing and am on Tecfidera.

        Originally posted by pennstater View Post
        I actually had this years ago, prior to diagnosis and pre-meds.. It lasted about 3 months, then went away. I had a full blood work up, rheumatologist told me to see a neurologist after she cleared me. It went away, so I didn't. I was later told it could have been a flare.

        Now have it on right side, knee, hip, and ankle. The hip and knee sometimes give out. Like you, mild arthritis. It feels better when I exercise. Have also been trying to build up muscles around the joints.

        So not sure if age related, MS, or something else.
        MS Diva
        (Well-behaved women rarely make history. Just a heads-up for ya...)

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          #5
          Still nothing new to report---my knees continue to be very painful. Lately they've become so painful that it's difficult to even extend my legs (if I've been sitting for any length of time) or to stand up and walk---both sending me into pain of a high level.

          I had a virtual appointment with my neurologist and asked him and he didn't think that what I'm experiencing is tied to MS, although he said that spasm and pain from those spasms could mimic the pain I'm feeling. Still not sure that I'm buying that idea.

          Our insurance is going to change in another month and then I'm going to ask for a refer to a knee specialist. If that doctor cannot find anything going on inside either knee that is causing this then I'm saying it's MS and I'll be back to talk about it with my neurologist.
          Wendy
          "There are signs everywhere...."
          "Life is wasted if it's not lived as an adventure."

          Comment


            #6
            Sorry to hear TheBeans. I have to continue to do PT exercises almost every am. If I skip 2 days in a row, start to ache. 3 days in a row, they are screaming at me and stiff.

            It is a good idea to see an orthopedist to see what is going on. Lots of luck to you.

            MSDiva - Sorry I missed your post. My knees and hip are definitely arthritic. Hope you got some answers for yourself.
            Kathy
            DX 01/06, currently on Tysabri

            Comment


              #7
              Hi TheBeans.

              It sounds like arthritis to me.

              I had a total knee replacement at the end of January 2020. What you are describing sounds like what I experienced.

              Hope you can see an Orthopedist in the near future.
              Diagnosed 1984
              “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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