Hello All,
Symptoms:
March of 2018: 3 Hot pin prick sensations on top of head and arm.
Night sweats that were soaking.
May until June: Feeling like something was coursing through bloodstream, hard to explain, chills, hot flashes like a fever but no temperature. Excess sweating during strenuous activity and longer muscle recovery after exercise or work.
Was bit by a tick on a nature trail but received Doxycycline the same day and tested negative a few times after that up to a year after for Lyme.
July until now: Burning sensation of tongue, like it's infected with something. No relation to what I eat or don't eat. Most concerning is what seems to be thinning/atrophy of leg muscles and deep bone pain in ankles. Thigh and calf muscle aching. Still some night sweats though not as bad. Fatigue that comes and goes, muscle recovery takes longer even from simple tasks like carrying a basket at grocery store. Some loss of balance, knees sometimes feel like they could give out.
Continued weakness in legs and what seems to be muscle atrophy that is very slowly progressing but concerning.
Take usually 8 Advil and 8 Tylenol a day, plus a Turmeric Curcumin drink, Fish Oil, Vit D, Vit C, Fucoidan as it helps fight HTLV if that's what this is even...
Bloodwork
So far bloodwork shows chronic inflammation (Sed Rate of 30 when history is 6, and CRP of 7.4) that comes and goes, low testosterone (212) taking androgel, high Globulin, and mixed hyperlipidemia / abnormal lipid values. CT Scans show no signs of Multiple Sclerosis.
Antibody and PCR checked for HIV, Hepatitis Panel, HTLV I and II, Lyme, RA Factor, CA-19 Antigen. Xrays show bones in feet and legs look ok. EMG did not detect any signal disruption between legs and brain.
Trying to now get an MRI of brain and spinal column. Trying not to lose use of my legs... Really thought this was HTLV HAM/TSP, unless it's all in my spinal column CSF fluid, but I should still have antibodies in the blood. Neurosyphyillis usually presents with a sore of some kind which I don't have.
Thanks,
Matt
Symptoms:
March of 2018: 3 Hot pin prick sensations on top of head and arm.
Night sweats that were soaking.
May until June: Feeling like something was coursing through bloodstream, hard to explain, chills, hot flashes like a fever but no temperature. Excess sweating during strenuous activity and longer muscle recovery after exercise or work.
Was bit by a tick on a nature trail but received Doxycycline the same day and tested negative a few times after that up to a year after for Lyme.
July until now: Burning sensation of tongue, like it's infected with something. No relation to what I eat or don't eat. Most concerning is what seems to be thinning/atrophy of leg muscles and deep bone pain in ankles. Thigh and calf muscle aching. Still some night sweats though not as bad. Fatigue that comes and goes, muscle recovery takes longer even from simple tasks like carrying a basket at grocery store. Some loss of balance, knees sometimes feel like they could give out.
Continued weakness in legs and what seems to be muscle atrophy that is very slowly progressing but concerning.
Take usually 8 Advil and 8 Tylenol a day, plus a Turmeric Curcumin drink, Fish Oil, Vit D, Vit C, Fucoidan as it helps fight HTLV if that's what this is even...
Bloodwork
So far bloodwork shows chronic inflammation (Sed Rate of 30 when history is 6, and CRP of 7.4) that comes and goes, low testosterone (212) taking androgel, high Globulin, and mixed hyperlipidemia / abnormal lipid values. CT Scans show no signs of Multiple Sclerosis.
Antibody and PCR checked for HIV, Hepatitis Panel, HTLV I and II, Lyme, RA Factor, CA-19 Antigen. Xrays show bones in feet and legs look ok. EMG did not detect any signal disruption between legs and brain.
Trying to now get an MRI of brain and spinal column. Trying not to lose use of my legs... Really thought this was HTLV HAM/TSP, unless it's all in my spinal column CSF fluid, but I should still have antibodies in the blood. Neurosyphyillis usually presents with a sore of some kind which I don't have.
Thanks,
Matt
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