Hi,
Right now, that is my diagnosis...demyelination disorder. I can live with that, symptoms aren’t horrible and I’m thankful for the most part for that. My biggest concern is to know what’s going on so it can be treated and hopefully not worsen.
It started about 17 years ago when I went to my eye doctor because of a blurry spot in my vision, only to find out that I had optic neuritis. He referred me to a neurologist after telling me it’s often the first warning sign of MS. Luckily my neurologist was great and saw a lesion on my brain MRI but wasn’t worried about this staying many people can be born with this.
Now at 40 years old, this started again last fall. I went to my doctor because I had no cold sensation in my left hand and numbness in my arm. It eventually traveled to my left leg. Brain MRI was fine but I did have inflammation in my cervical spinal cord. Again, MS was brought up but by the time I saw the neurologist symptoms improved and we agreed to monitor for anything new. Since then I’ve had burning in my right leg, with only one incident of it actually feeling like my leg was on fire. I’ve had two pretty significant episodes of extreme muscle spasms in my rib cage last about 20 minutes. I had a follow up MRI when I was having the leg burning, nothing new other than my cervical lesion improving.
I decided to get a second opinion of the review of my symptoms from the neurologist who I saw for the ON. I’ll have a MRI of my thoracic spine next week and a LP. He said right now I have demyelination disorder. Despite requirements being met for a diagnosis of MS the two could very well not be connected due to the length of time between the two episodes.
Im okay with all of this, the biggest concern I had is I don’t want to ignore what’s happening and inadvertently have it get worse.
Hoping for the best, but I don’t entirely know what that would be at this point.
Right now, that is my diagnosis...demyelination disorder. I can live with that, symptoms aren’t horrible and I’m thankful for the most part for that. My biggest concern is to know what’s going on so it can be treated and hopefully not worsen.
It started about 17 years ago when I went to my eye doctor because of a blurry spot in my vision, only to find out that I had optic neuritis. He referred me to a neurologist after telling me it’s often the first warning sign of MS. Luckily my neurologist was great and saw a lesion on my brain MRI but wasn’t worried about this staying many people can be born with this.
Now at 40 years old, this started again last fall. I went to my doctor because I had no cold sensation in my left hand and numbness in my arm. It eventually traveled to my left leg. Brain MRI was fine but I did have inflammation in my cervical spinal cord. Again, MS was brought up but by the time I saw the neurologist symptoms improved and we agreed to monitor for anything new. Since then I’ve had burning in my right leg, with only one incident of it actually feeling like my leg was on fire. I’ve had two pretty significant episodes of extreme muscle spasms in my rib cage last about 20 minutes. I had a follow up MRI when I was having the leg burning, nothing new other than my cervical lesion improving.
I decided to get a second opinion of the review of my symptoms from the neurologist who I saw for the ON. I’ll have a MRI of my thoracic spine next week and a LP. He said right now I have demyelination disorder. Despite requirements being met for a diagnosis of MS the two could very well not be connected due to the length of time between the two episodes.
Im okay with all of this, the biggest concern I had is I don’t want to ignore what’s happening and inadvertently have it get worse.
Hoping for the best, but I don’t entirely know what that would be at this point.
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