Hello everyone ! First of all, excuse my english. I am 20M with no neurological disease in family history (except fibromlygia for my grandpa, does it count as neuro disease ?) and currently shaken with MS fears. I have seen 2 neuros who told me they were sure at 99% I didn’t have MS, but I have read enough about this disease to know you need MRI’s to confirm it or rule out. My MRI’s are scheduled in the end of July. Until then, the uncertainty and the waiting are killing me.
Here’s a list of my symptoms to make it easier for reading, according to chronological order.
February 2019 : Consistent pain in the chest ( heart/upper left lung area). I wasn’t very painful but left me anxious as it was localized in a critical area. Waited a few days and went to the ER. They checked both heart and lung and sent me home with painkiller. The pain disappeared after 2-3 days. Didn’t have a clue back then but could it be the MS Hug? I reckon the hug is often way more unbearable and doesn’t last that long (roughly 5 days in my case)
March : Pain behind right eye. No vision alteration but the pain was very annoying, and was multiplied when I closed my eyes, leaving me sleepless for hours. Went to the GP and he told me it probably was ocular fatigue as I was spending a lot of time behind the computer for school work. The pain slowed down and left within a week. It was at that time I read about Optic Neuritis ( once again, doesn’t really fit my symptoms) and developed some anxiety about MS.
March : The day after the eye thing stopped, I woke up with (perceived ?) weakness/fatigue on both my legs ( especially tights/quadriceps) and a few hours after that had an episode of bladder issue ( went to the bathroom to pee about 7-8 times in an 1H30). Those 2 new symptoms of course increased my anxiety. I was lucky and had a neuro appointment 2 days after. We did VEP test ( optic nerves were normal) and she checked reflexes on legs/feet , and told me it wasn’t MS at 99% according to my symptoms, but still adviced to run MRI’s on spine and brain to be sure.
April : After that appointment well I was relieved for about a week, and felt like the fatigue on my legs was decreasing. Around that time, I developed another symptom. I was sitting in front of the computer and felt something like a pinch on my right spacula. Immediately after, the area roughly between right elbow and hind arm was going numb and lightly tingling for 30 sec, then stopping, then again for 30 sec... It eventually passed in 5-6 days.
April : Got a cold, and the fatigue in my legs came back. They felt heavy, but I could still walk or climb stairs. Then I started having pain on my right thumb. I thought it was because I was spending so much time on the phone. Then the pain extended to all fingers, on both hands. They were (still are) aching, especially when I have my palm open and fingers stretch. this made me have (irrational according to my age, I admit) ALS fears. Then I developed slight tremor on both hands ( when I open my palm or hold my phone).
May : Went to another neuro with that whole new hand stuff. He didn’t seem very concerned by those, and he made me an EMG test on both legs ( it was very fast, like 5-10 min, normal ?), checked reflexes again ( no Babinski or overreacting reflexes) , made me walk on toe and heels, the classic stuff. He looked 20 seconds at the EMG results and told me they were “pretty reassuring”. He also said, just like the other neuro, it wasn’t MS at 99% , because with all those symptoms it would mean I had a lot of lesions, which didn't seem likely to him.
Now since about 20 days, I have a whole lot of new symptoms going on. I have a sort of internal vibration on my lower body when I'm about to fall asleep. I have minor twitching on my hands, arms, legs. Twitching in my right eyelid. When I'm laying down , I feel some kind of pulsation on my spine, upper back. WHAT IS ALL THIS ? MS ? PPMS ? BFS ? Fibro ? I guess the presentation of my symptoms fit more PPMS. Maybe it's some kind of BFS mixed up with anxiety. Does anyone had a similar symptom story ?
Thank you for reading and for any opinions , sorry for the long post and the english mistakes.
Here’s a list of my symptoms to make it easier for reading, according to chronological order.
February 2019 : Consistent pain in the chest ( heart/upper left lung area). I wasn’t very painful but left me anxious as it was localized in a critical area. Waited a few days and went to the ER. They checked both heart and lung and sent me home with painkiller. The pain disappeared after 2-3 days. Didn’t have a clue back then but could it be the MS Hug? I reckon the hug is often way more unbearable and doesn’t last that long (roughly 5 days in my case)
March : Pain behind right eye. No vision alteration but the pain was very annoying, and was multiplied when I closed my eyes, leaving me sleepless for hours. Went to the GP and he told me it probably was ocular fatigue as I was spending a lot of time behind the computer for school work. The pain slowed down and left within a week. It was at that time I read about Optic Neuritis ( once again, doesn’t really fit my symptoms) and developed some anxiety about MS.
March : The day after the eye thing stopped, I woke up with (perceived ?) weakness/fatigue on both my legs ( especially tights/quadriceps) and a few hours after that had an episode of bladder issue ( went to the bathroom to pee about 7-8 times in an 1H30). Those 2 new symptoms of course increased my anxiety. I was lucky and had a neuro appointment 2 days after. We did VEP test ( optic nerves were normal) and she checked reflexes on legs/feet , and told me it wasn’t MS at 99% according to my symptoms, but still adviced to run MRI’s on spine and brain to be sure.
April : After that appointment well I was relieved for about a week, and felt like the fatigue on my legs was decreasing. Around that time, I developed another symptom. I was sitting in front of the computer and felt something like a pinch on my right spacula. Immediately after, the area roughly between right elbow and hind arm was going numb and lightly tingling for 30 sec, then stopping, then again for 30 sec... It eventually passed in 5-6 days.
April : Got a cold, and the fatigue in my legs came back. They felt heavy, but I could still walk or climb stairs. Then I started having pain on my right thumb. I thought it was because I was spending so much time on the phone. Then the pain extended to all fingers, on both hands. They were (still are) aching, especially when I have my palm open and fingers stretch. this made me have (irrational according to my age, I admit) ALS fears. Then I developed slight tremor on both hands ( when I open my palm or hold my phone).
May : Went to another neuro with that whole new hand stuff. He didn’t seem very concerned by those, and he made me an EMG test on both legs ( it was very fast, like 5-10 min, normal ?), checked reflexes again ( no Babinski or overreacting reflexes) , made me walk on toe and heels, the classic stuff. He looked 20 seconds at the EMG results and told me they were “pretty reassuring”. He also said, just like the other neuro, it wasn’t MS at 99% , because with all those symptoms it would mean I had a lot of lesions, which didn't seem likely to him.
Now since about 20 days, I have a whole lot of new symptoms going on. I have a sort of internal vibration on my lower body when I'm about to fall asleep. I have minor twitching on my hands, arms, legs. Twitching in my right eyelid. When I'm laying down , I feel some kind of pulsation on my spine, upper back. WHAT IS ALL THIS ? MS ? PPMS ? BFS ? Fibro ? I guess the presentation of my symptoms fit more PPMS. Maybe it's some kind of BFS mixed up with anxiety. Does anyone had a similar symptom story ?
Thank you for reading and for any opinions , sorry for the long post and the english mistakes.
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