I was dx with MS at the end of 2012. It was my worst nightmare because my mother had MS and was in a wheelchair for a long time. When she died the death certificate says she died of aspiration due to MS.
I am not nearly as bad as my mom. I can walk OK and after acupuncture my balance improved enough for me to walk without my cane. I meditate and just started yoga. I am dizzy all day which is very uncomfortable but the worst thing for me is feeling sick all the time. It has worn me down. I want to lie on the floor and kick my arms and legs and throw one heck of a tantrum.
I quit my dmd after 5 years because I remained stable. I am 71 years old and though it is scary, I hope the burn out theory is correct. I haven't had any relapses since my dx and have felt better most of the time without the side effects of my dmd. I have terrible insomnia and that doesn't help how I feel when I wake up. I just feel like I am at my wits end. I feel sick every single day. I don't want to burden my family so I try not to complain but they can see it.
What do you do when there is nothing else you can do???
I am not nearly as bad as my mom. I can walk OK and after acupuncture my balance improved enough for me to walk without my cane. I meditate and just started yoga. I am dizzy all day which is very uncomfortable but the worst thing for me is feeling sick all the time. It has worn me down. I want to lie on the floor and kick my arms and legs and throw one heck of a tantrum.
I quit my dmd after 5 years because I remained stable. I am 71 years old and though it is scary, I hope the burn out theory is correct. I haven't had any relapses since my dx and have felt better most of the time without the side effects of my dmd. I have terrible insomnia and that doesn't help how I feel when I wake up. I just feel like I am at my wits end. I feel sick every single day. I don't want to burden my family so I try not to complain but they can see it.
What do you do when there is nothing else you can do???
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