Mrssaged my Doctor's office that I need a new order for tysabri. They messaged back that I will no longer be on tysabri because I started taking ampyra. I thoight they had 2 different purposes. I'm very confused. Already called office waiting for an answer.
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My new side hustle: Getting my medical care straight
I'm not on either of those medications, but when I first saw your subject line my first thought was "NOOOOO, Amprya isn't a disease modifying therapy"
Someone's confused. Nonetheless, I am in the midst of hours of back and forth with doctors offices that don't communicate effectively with insurance companies that don't communicate effectively with doctors. And don't get me started on nurses and other staff who are just guessing. All while my brain eats itself.
Getting everyone aligned is like a part-time job for me lately. If I didn't look at it that way, I'd just be angry and sad all the time.
Best of luck!
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I am be glad to echo Mable's post ! Those 2 drugs are not supposed to do the same thing . Don't take my word for it. Call a Tysabri nurse advocate or an Ampyra nurse . They will know the story. If I were you, I would find a Real, Honest to Goodness, MS Specialist ! If that was the story that you heard from your current neuro, something's not right !
Good luck
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Originally posted by JerryD View PostI am be glad to echo Mable's post ! Those 2 drugs are not supposed to do the same thing.
Nada
Hope you get it straightened out and keep us posted!1st sx '89 Dx '99 w/RRMS - SP since 2010
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Thanks guys! I know they have 2 different purposes but it shocks me that neuros office would get something so wrong.
I just needed to hear other MSers thoughts to clarify for myself.
They did not call me back today so I will call back in the morning.
I've already complained to the office mgr about this nurse so we'll see what happens tomorrow.DIAGNOSED=2012
ISSUES LONG BEFORE
REBIF 1 YEAR
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Originally posted by mercadies25 View PostHello,
I sent in your Tizanadine to your pharmacy on 4/5/19 but the Tysabri medication was replaced with Ampyra. If you need refills of the Ampyra I can refill those.
Have a great day,
Summer P., CMAKathy
DX 01/06, currently on Tysabri
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That doctor doesn’t know his butt from a hole in the ground. I hope you have some other options.
I have been on Tysabri since 2010. In 2018 I started Ampyra. Still take Tysabri.
I hope you get this straighted out fast! Going off Tysabri can cause terrible rebounds that don’t reverse themselves.
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Update
So finally got the answer. Sorry for the confusion! I will remain on Tysabri and begin use of ampyra. I figured problem solved back to business. She sent my order for tysabri to Wal-Mart as a refill. SMH! The ppl at infusion site called her 2xs to try to fix. They ended up working around her.
The neuro is great but he definitely needs a new assistant.
Thank you all for your help.DIAGNOSED=2012
ISSUES LONG BEFORE
REBIF 1 YEAR
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Originally posted by mercadies25 View PostThe neuro is great but he definitely needs a new assistant.
Thank you all for your help.1st sx '89 Dx '99 w/RRMS - SP since 2010
Administrator Message Boards/Moderator
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