I guess I’ve come here to relate to others who might have gone through or are going through what I am going through. I’m convinced I have MS but at the moment my doctors aren’t taking me very seriously because I’m not showing lesions on MRI. They are treating me for other things but don’t think they are MS related.
To start off with I’ll just list what I have been diagnosed with.
Epileptiform discharges originally diagnosed as frontal lobe seizures
bilateral trigeminal neuralgial
balance issues I’m working with the PT with. That’s all they’ve been able to find
I’ve had what I believe was spasticity over a decade ago in all four limbs that lasted for 4 days. I’ve had periods of brain fog and severe fatigue that lasts about a week. About 4 years ago I had ataxia and went to the hospital did an MRI and it was clear. Doctor said it was stress. My memory progressively got worse during these years to where I forgot appointments and obligations. Two years ago I suspected I might have MS and sought help from a neuro. She did all sorts of tests on me and concluded I did not have MS. Some weeks later I developed vertigo, slurred speech, clumsiness, and blurred vision. I went back to the neuro and she thought I had a stroke. Did another MRI and it was clear. Long story short she suggested it could have been seizures or a TIA with no clear diagnosis.
Right now I’m getting a second opinion from another neuro but it’s pretty slow moving. It’s been a pretty frustrating journey so far. Has anyone been through something similar?
To start off with I’ll just list what I have been diagnosed with.
Epileptiform discharges originally diagnosed as frontal lobe seizures
bilateral trigeminal neuralgial
balance issues I’m working with the PT with. That’s all they’ve been able to find
I’ve had what I believe was spasticity over a decade ago in all four limbs that lasted for 4 days. I’ve had periods of brain fog and severe fatigue that lasts about a week. About 4 years ago I had ataxia and went to the hospital did an MRI and it was clear. Doctor said it was stress. My memory progressively got worse during these years to where I forgot appointments and obligations. Two years ago I suspected I might have MS and sought help from a neuro. She did all sorts of tests on me and concluded I did not have MS. Some weeks later I developed vertigo, slurred speech, clumsiness, and blurred vision. I went back to the neuro and she thought I had a stroke. Did another MRI and it was clear. Long story short she suggested it could have been seizures or a TIA with no clear diagnosis.
Right now I’m getting a second opinion from another neuro but it’s pretty slow moving. It’s been a pretty frustrating journey so far. Has anyone been through something similar?
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