Totally wiped out

[Carlyle]

Hi,I’m pretty sure this is the norm on how I am felling I just need you all to put any advice for me.I cannot believe how Wipeout I got from so little I did today!Whatched my poor dw put some topsoil in some holes in our yard.I feel so useless.Ive got spms which I’ve had for 5 years.Im in a wc. Seems like this happened to quick!Dave

[Mamabug]

I've had MS for 17 years. My MS specialist said, over a year ago, that I was "borderline" SPMS. So, I might be there now.

Until about 10 months ago, I'd also felt like I was declining quickly. At that point, I started seeing a functional medicine doctor and made bug changes to my diet and lifestyle.

I seem to be staying stable now.

[MermaidOP]

Dear Carlyle,
Sorry you are having "one of those days." I have been SPMS for a long time, and sometimes the fatigue is so discouraging, and sometimes I don't seem to get much done. Don't give up. Keep trying and take the best care of yourself you can. Daily exercise, good nutrition, cognitive games, and spiritual practices are my foundation of self-care.

Your neurologist may be able to help. Mine has given me a prescription for an anti-fatigue medicine that I take only when I know I'll be having a busier day. (The side affects and possibility of addiction convince me to avoid regular use.) Talk about it with your doctor.

My husband does most of the work around here now too. I and grateful, but empathize with your guilty twinges.

Good luck to you and
Stay lifted,
Mermaid Susan

[marti]

Carlyle..I am wiped out every single day whether I do anything physical or not. It never ends. Hope you perk up soon. It's torture.

[Carlyle]

Thanks for responding everyone,Marti you are so right,it is torture!So much I see that needs attention,that I’m no longer able to do!Well at least it didn’t mess with my vision.Marti I am sorry about your dh

[marti]

Thanks for responding everyone,Marti you are so right,it is torture!So much I see that needs attention,that I’m no longer able to do!Well at least it didn’t mess with my vision.Marti I am sorry about your dh

Thank you.

[pennstater]

Hi Carlyle,

Not sure if SPMS yet. More trouble with arms than legs.

I am sorry you are feeling this way. My husband works long hours and does the outside work, and more and more cleaning and cooking too. I do what I can, but can't keep up with the house. I get frustrated and down sometimes when I see him step up and do yet another chore, and how exhausted he can get. He almost never complains.

Then I remind myself how lucky I am to have someone willing to go the extra mile. It helps me if I focus on gratitude. I make sure to tell him how grateful I am and how lucky he makes me feel. If I can't do the physical along side him, I can try to make sure I am alongside him in emotional support. It seems to help him too.

Hope you are feeling better.

[Carolinemf]

Penstater you said it so well.
And yep it is torture. And i would imagine that it would hit a man much harder.

Carlyle the only thing that has made me feel non- useless in years is beginning to operate some heavy machinery on our farm. This wasn't planned but it makes such a difference.

Pretty much every thing is lever or button controlled or auto. alot of machinery is getting simpler to use in this day and age.

I don't think you have a farm and i don't advocate buying one
but are there any machines that may aid you to do some thing that you feel would help?