Hello everyone!
Late last year I was diagnosed with Clinically Isolated Syndrome due to MS style lesions on the brain (my cervical spine was clear, and they haven't done a Tspine MRI), oligoclonal bands in my spinal tap, and a short bout of nystagmus (less than 24 hours, but with everything else and some of the below symptoms my docs thought there was enough evidence for the CIS diagnosis). I started Copaxone in November. So far, that's going pretty well it's just annoying, painful, and leaves some lumps that eventually go away.
Anyway, I was curious if anyone was familiar with any of the following symptoms. I have, of course, gone over them with my neuro (an MS specialist), but I thought I'd ask those who've experienced it.
-Anxiety and depression (I know that's not an ultimate sign since it happens in so many other people, but it can be part of it).
-Numbness, tingling, or pinpricks: I get this mainly in my hands or feet. It can be one or the other or both. Sometimes it seems triggered by holding something or having my hands in a certain position (like falling asleep, but more easily than it used to), and other times it's just random. Sometimes I've had the tingling in other places of my body. It doesn't last for 24 hours or more at time, but I do experience it every day on and off throughout the day. I've heard about paroxysmal symptoms which sounds interesting.
-Dizziness/vertigo: I'm not sure which is which, but sometimes I have this almost dizzy/slightly off balance/wobbly feeling. Never enough to limit my activities or make me fall.
-Pressure in head: Sometimes I've felt like this pressure/unfocused eyes feeling. When I work at it, I can focus though.
-Nystagmus: I've experienced this years ago (feeling like the world around me was shifting back and forth, I wondered if people could see my eyes shaking, but never asked). The most recent episode involved waking up from a sleep to this (I was dreaming that I was spinning). After getting a drink of water and using restroom, I went back to bed and woke up fine.
-Sensitivity to noise and commotion: Not sure if this is just my anxiety, but I've become increasingly sensitive to noisy environments or commotion. Not all the time, but frequently. It makes me feel really irritated, overwhelmed and like I want to escape the situation.
Fairly frequent migraines and headaches: This has been something I've dealt with for many years.
Seizures: I had 2 seizures (in the same day) back in 2012. Been on medication and seizure free ever since.
My most recent issue (about to go see my primary care doc about it, as I think it's more likely due to some other issue than to be MS related) is pain in my right hip. Predominately along the groin area and sometimes along the outer side. Kind of like an aching or burning sensation. Not all day, but has been happening since probably January. Not severe, but the length of time is worrying me. Tends to be more noticeable at rest.
Anyone experience anything like these or know anything about it? Thanks so much!
Late last year I was diagnosed with Clinically Isolated Syndrome due to MS style lesions on the brain (my cervical spine was clear, and they haven't done a Tspine MRI), oligoclonal bands in my spinal tap, and a short bout of nystagmus (less than 24 hours, but with everything else and some of the below symptoms my docs thought there was enough evidence for the CIS diagnosis). I started Copaxone in November. So far, that's going pretty well it's just annoying, painful, and leaves some lumps that eventually go away.
Anyway, I was curious if anyone was familiar with any of the following symptoms. I have, of course, gone over them with my neuro (an MS specialist), but I thought I'd ask those who've experienced it.
-Anxiety and depression (I know that's not an ultimate sign since it happens in so many other people, but it can be part of it).
-Numbness, tingling, or pinpricks: I get this mainly in my hands or feet. It can be one or the other or both. Sometimes it seems triggered by holding something or having my hands in a certain position (like falling asleep, but more easily than it used to), and other times it's just random. Sometimes I've had the tingling in other places of my body. It doesn't last for 24 hours or more at time, but I do experience it every day on and off throughout the day. I've heard about paroxysmal symptoms which sounds interesting.
-Dizziness/vertigo: I'm not sure which is which, but sometimes I have this almost dizzy/slightly off balance/wobbly feeling. Never enough to limit my activities or make me fall.
-Pressure in head: Sometimes I've felt like this pressure/unfocused eyes feeling. When I work at it, I can focus though.
-Nystagmus: I've experienced this years ago (feeling like the world around me was shifting back and forth, I wondered if people could see my eyes shaking, but never asked). The most recent episode involved waking up from a sleep to this (I was dreaming that I was spinning). After getting a drink of water and using restroom, I went back to bed and woke up fine.
-Sensitivity to noise and commotion: Not sure if this is just my anxiety, but I've become increasingly sensitive to noisy environments or commotion. Not all the time, but frequently. It makes me feel really irritated, overwhelmed and like I want to escape the situation.
Fairly frequent migraines and headaches: This has been something I've dealt with for many years.
Seizures: I had 2 seizures (in the same day) back in 2012. Been on medication and seizure free ever since.
My most recent issue (about to go see my primary care doc about it, as I think it's more likely due to some other issue than to be MS related) is pain in my right hip. Predominately along the groin area and sometimes along the outer side. Kind of like an aching or burning sensation. Not all day, but has been happening since probably January. Not severe, but the length of time is worrying me. Tends to be more noticeable at rest.
Anyone experience anything like these or know anything about it? Thanks so much!
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