This is a new one for me. Was diagnosed in 2003 with RRMS and have had been on a variety of treatments, the latest being Plegridy (for a little over a year now). I am very familiar with fatigue and how it affects me and what may set it off at times, but lately I've had fatigue hit me in waves and this is totally new.
I can wake up and have lots of energy and I get going and about 3 hours into the day I find that I have got to stop and I usually fall asleep for a few hours! Then I wake up and I'm good again for several hours and it comes back to hit me again. Has this ever happened to anyone else?
I am on Modafinil but only on as-needed basis. When the fatigue days hit me I take one in the morning and then another around 1pm and it's geneally a good fix...but not lately. It seems that it's not even touching the fatigue I'm dealing with. I am not on Modafinil daily so there's not any issue with medication-saturation.
Another weird thing: aching legs and sometimes arms. I've never had to deal with spasticity so I don't know if the aches are a part of that particular symptom. Heating pads help, topicals like Icy Hot help but it doesn't stop the aches. The aches also switch legs and will sometimes include my upper arms. And the frosting on the cake is the occasional intense 'sting' in a toe or on an ankle or the side of a hand. Is this spasticity?
I can wake up and have lots of energy and I get going and about 3 hours into the day I find that I have got to stop and I usually fall asleep for a few hours! Then I wake up and I'm good again for several hours and it comes back to hit me again. Has this ever happened to anyone else?
I am on Modafinil but only on as-needed basis. When the fatigue days hit me I take one in the morning and then another around 1pm and it's geneally a good fix...but not lately. It seems that it's not even touching the fatigue I'm dealing with. I am not on Modafinil daily so there's not any issue with medication-saturation.
Another weird thing: aching legs and sometimes arms. I've never had to deal with spasticity so I don't know if the aches are a part of that particular symptom. Heating pads help, topicals like Icy Hot help but it doesn't stop the aches. The aches also switch legs and will sometimes include my upper arms. And the frosting on the cake is the occasional intense 'sting' in a toe or on an ankle or the side of a hand. Is this spasticity?
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